1 – 6 July: Meanwhile, back in the UK…

Author: Mrs A

Location: London and Brighton, UK

Monday: A taxi collected me from Camping Stobreč early Monday morning and escorted me to Split airport, where I boarded a plane to London, Gatwick. Within half an hour of landing at Gatwick I was on a train heading to London. It was all very smooth – having only 8kg of hand luggage helped!

Split airport – not too busy at 8.30am on Monday morning

Yes, you guessed it, the injections I had flown back for at the end of May had not made any substantial impact on my breathing, and I was on my way back for surgery…very disappointing for us both, but sadly a fact of life we have learned to get used to the past 15 years.

I have to admit that after the heat of Croatia, it was positively refreshing to step out of the airport in to temperatures in the low 20s – like the air conditioning we had been craving all weekend!

I caught a train up to West Kensington in London and checked into the Earls Court Holiday Inn Express near the hospital. I was scheduled to be in at 7.15am, and was keen to get a bit of sleep before the operation.

The view from my hotel room – a far cry from the Roman and medieval buildings of my past few weeks, but not too bad at sunset

Tuesday: I woke early and strolled over to the hospital, meeting junior doctors, an ENT registrar and the anaesthetist, getting weighed, blood pressure and temperature tested. Finally I slipped on a gown and a pair of sexy green DVT stockings and headed to theatre for my airway dilatation.

Both consultants I have been seeing, Mr Guri Sandhu and Mr Chad Al Yaghchi came to visit me in recovery, much to the surprise of the nurse who told me not to expect anyone. All had gone well – my airway had closed by about 60-70%, explaining the challenges with breathing I have been having.

We discussed next steps for my treatment, with both doctors agreeing I should give the steroid injections into my airway another try, but with a higher frequency – every 4-6 weeks rather than 8 weekly. This is what my original doctor had told me, but I had defied him, not wanting to disrupt our travel plans too much…this time, however, I agreed to give it a go. It is going to be hard to keep to our travel plans where I keep having to return to doctors for treatment, but I have to breathe…very frustrating!

Mum travelled up from Hastings to break me out

When I was returned to the next stage of recovery, my mum was there waiting for me, a welcome face amongst all the medical fraternity. Together we left the hospital, taking a taxi the five minute drive to the hotel for the night.

Evidence – 2:10pm I broke out of hospital

We had a relaxing afternoon, catching up on news, a Chinese takeaway and an early night.

Wednesday: Mum and I got to enjoy a final breakfast at the hotel, and we joined by a member of the support group I run, Kelly from Cornwall. She and I had been exchanging messages online for about four years, and she is also a patient of Mr Sandhu. It was amazing to hear Kelly’s story which is quite different from mine, but with some similar symptoms. She’s a passionate and enthusiastic lady – hopefully we can work together and perhaps meet again.

After checking out, I then headed to Brighton to finish my convalescence with my sister and her family.

Thursday: One of my friends from university, Claire, lives near to my sister and also had a hospital visit this week. It was good to catch up with her for an hour to hear how she had gone. Soda water and lime was our choice of beverage as we sat in a sunny pub garden.

Two post op friends – Claire on surgery #1 and me #29!!

Later in the day I joined my sister in collecting my niece and nephew from school, and we took them down to the local park for a play in the fountains down there. Much fun for the children…and ice creams for my sister and I (medicinal reasons of course, soothes a sore throat!)

Yay for vegan ice cream!
Elliot working on stopping the flow….What happened next? Yes the water sprayed me straight in the face!
Isabel enjoying the water
And some park time to help warm up after the water

Friday: It was back up to school with the kids to drop them off for their day, before joining my sister in some shopping, picking up bits and pieces we cannot get in Croatia.

That wiped me out for the afternoon, and I was grateful not to be in 33 degrees as I collapsed into bed for a sleep.

We had a quiet evening at home, sharing a takeaway curry and a glass of wine as the sun went down.

Spectacular skies over Brighton this evening

Saturday: Another bright sunny day with temperatures in the low 20s – making me really appreciate British summertime – I wonder why it never is dull and rainy when I visit? Poor Mark is already sweltering in Split, having started his day with the washing and cleaning out the fridge.

I’m pleased to say my breathing is much better, and sore throat aside, I am feeling good.

Chart showing my peak expiratory flow (PEF) – back on track for now

I will be back on a train to the airport this afternoon, then back to Split this evening. Mark and I have decided tomorrow it will be time to move on and explore more of Croatia…it will all be much easier with a full airway!

6 Replies to “1 – 6 July: Meanwhile, back in the UK…”

  1. So glad you’re breathing better, Catherine, and you two can continue your adventures.
    Hugs for continued good health, Gayle

  2. Good to know that you are doing well. This way you can carry on with your travels in Croatia. Temperatures here in South Bulgaria have been right up to 38°C during the day and around 25°C at night. Even the day breeze is hot.

  3. Glad that your procedure went so smoothly and that your mother was able to be there for you. Fun hearing about the nurses surprise about your visitors. Didn’t they know that you’re the ROCK STAR of tracheal stenosis??? Onward!!!!

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