Working with the top surgeons around the world for idiopathic subglottic stenosis, Catherine has written Idiopathic subglottic stenosis: A Rough Guide for Beginners – a patient friendly document which explains everything someone with iSGS needs to know about the disease, its treatments, myths, what possible complications can occur and how to prevent these and much much more. This is available free of charge.
If you are able to contribute any money towards the work Catherine does on behalf of all airway stenosis patients, please donate via Catherine’s GoFundMe page . Money goes towards hosting this site, expenses for conference attendances and only on costs related to patient advocacy work.
Click on the image below to download the latest version of the guide:
If you would like to specifically focus on the new additions to the guide, they are highlighted in this version (click link)
If you would prefer to read the German language version, please click here
If you would prefer to read the Dutch or Spanish versions, please watch this space – updates are being prepared!