If you treat patients with iSGS and would like to be kept up to date with the latest papers and the most recent version of the Rough Guide, please contact Catherine via: id****************************@gm***.com
You can follow Catherine’s research (as author or co-author) via her account on ResearchGate
The top seven things we learned about iSGS and its treatment in 2023
The top six things we learned about iSGS and its treatment in 2022
The top five things we learned about iSGS and its treatment in 2021
The top five things we learned about iSGS and its treatment in 2020
North American Airway Collaborative
Access to all most recent and relevant papers from member organisations on the topic of iSGS.
iSGS and pregnancy – a new report based on research conducted with the support group I run, looking at patient experiences and attitudes with pregnancy while dealing with idiopathic subglottic stenosis.
Patient-Centered Outcomes Research Institute
The final report from The Vanderbilt Study – Treatment Alternatives in Adult Rare Disease; Assessment of Options in Idiopathic Subglottic Stenosis
And a paper which details the Wedge procedure which performed best in terms of longevity (time between operations) while minimising damage to voice.
For airway stenosis patients (Doctors also welcome!): Living with Idiopathic Subglottic Stenosis Facebook support group
And a paper analysing the effectiveness and content of the support group can be found here: Annals of Otology, Rhinology & Laryngology. 128(4):293–299, APRIL 2019 The Online Support Group as a Community: A Thematic Content Analysis of an Online Support Group for Idiopathic Subglottic Stenosis
Idiopathic Subglottic Stenosis – A Rough Guide for Beginners – (Known as ‘The Rough Guide) – booklet for patients, registrars, students helping explain in simple terms all about iSGS, its treatment options and other tips on coping. Updated May 2021.
A retrospective paper on the endoscopic resection technique: Idiopathic Subglottic Stenosis: An Evolving Therapeutic Algorithm, Laryngoscope, 124:498–503, 2014
Idiopathic Subglottic Stenosis is Associated with Activation of the Inflammatory IL-17A/IL-23 Axis, Laryngoscope, 127:179-185, 2017
Molecular Analysis of Idiopathic Subglottic Stenosis for Mycobacterium Species, Laryngoscope, 127:179-185, 2017
April 2019 – Vocal fold fixation due to proximal stenosis progression complicating idiopathic subglottic stenosis – S. A. R. Nouraei · E. B. Dorman· J. Johnston · D. E. Vokes
