Author: Mrs A
Location: Sydney, Australia
I can hardly believe we have been back in our home a single week, so much has happened!
As well as unpacking the caravan, restoring our bits and pieces into the house and restocking food supplies, we also took seven sacks of donations up the the nearby St Vincent do Paul Charity shop. It’s incredible how living in a space not much larger than your kitchen can refocus the mind, making you realise all the things you don’t need after all. It also helped that many of the clothes and shoes we gave away had been locked up for the past 18 months and we didn’t miss them. It is far better they’re used by someone who will appreciate them.
We managed to fit a few walks down to our local beach for some fresh air and to stretch the legs.
This week was also about medical visits. I had a few tests and saw a doctor about my sore foot – he believes my issues are not neuroma after all, but torn ligaments around my toe – something that can take about 18 months to heal, but can be helped with an orthotic insert. Excellent! I had been fearing surgery was my next step (so to say!).
Mr A saw his eye surgeon for extensive field tests to check out his glaucoma and again heard positive news there, with no decline in his vision, fabulous news.
And I was in hospital for an operation on my airway. I’m starting a new procedure with a new surgeon and hope my idiopathic subglottic stenosis can be kept at bay so more unhindered fun can be had in the great outdoors in the coming months.
Recovery from that op has been slowed by both Mr A and I catching colds – not ideal after surgery, but probably inevitable, and only a cold after all. What doesn’t kill you, makes you stronger so they say!
In addition to charity donations this week, we have been sorting out some things to sell. First of all my artwork. You probably have noticed I enjoy putting paint to paper on the odd occasion, and in the past have done a few exhibitions. No time for that right now, so I’m listing everything for sale here and on my Facebook page. If there is anything that interests you, let me know!
There will be a few eBay/GumTree sales coming up too – a few household items, plus our packrafts and Mr A’s single kayak. So lots of work ahead.
Miss Tassie has been enjoying having a wide choice of sunny spots to stretch out in, and has settled in nicely to being back in the house for the time being.
The America we have met on this trip is one full of kind, respectful people (no..we didn’t meet any politicians). We had so many instances of people (friends and strangers) go out of their way to be thoughtful and courteous. When you read the headlines focusing on the negative headlines from here, as elsewhere, its easy to forget a country is made up of individuals. It’s hard not to generalise about the “behaviour” of groups of people from the same geography, race, religion or sex. As humans, we want the simple truths, but really we will find as much variation as commonality.
We have so many highlights it would be unfair to call them out, but I will. Thank you to all the people who went out of their way to help make our trip here go so well. Those who had us stay (may your livers recover), those who helped us settle in (Deborah of the care package extraordinaire), those who gave us tips on specific things to do in their patch, and most importantly to the doctors who provided a “just in case” safety net for Catherine (who can’t get medical travel insurance for her breathing disease).
We have eaten some fabulous food, cooked by friends or out and about, the choice of cuisine is almost endless. The option to not have sugar or dairy in it…a little harder. We sampled some amazing wines in California (Dave and SJ, Susan and Joe – you have such great taste!), and mind bending cocktails and bourbon courtesy of the Chases in Cicero.
Thank you for your hospitality America. It’s time to return to Sydney, and the life and friends we have there, but we are certain we shall return.
After many cups of tea and a proper southern breakfast (Mr A at least tried grits with cheese and maple syrup – an odd combination I thought!), we all went our separate ways.
I presented a few slides first, talking about the group and some thoughts I have for future opportunities with treatment and information, then Dr Gelbard and Dr Francis presented their findings from three years of longitudinal research with patients.
There is much more opportunity for more research and studies ahead. We’ve funded a further two years of data collection from the iSGS 1000, but more funding is required to enable clinical trials in the future. We’re hoping to somehow set up a charitable foundation to help fund this, and I have no doubt Alex and David will be keeping an eye out for any more grants they can apply for.
Catherine spent the afternoon preparing for her presentation tomorrow. I went for a wander, heading for Centennial Park. A bloke sidled up to me and said “Give me 20 bucks or I’ll cut you!”. Not an ideal situation, to say the least. Doesn’t he realise the shocking exchange rate?
Dinner was a very pleasant affair with two of the people we have met already on our travels who come to Atlanta for the conference Catherine is speaking at (Deborah from Pasadena and Kim from Yosemite), and two people who work for Vanderbilt University (Cheryl and Kate) who are organising the conference and providing support and guidance for the research team.
Travel for me is so much about meeting new people and getting a glimpse into their lives. Tonight was a great example of how rewarding that is.
Our first night was spent at a beautiful Italian seafood restaurant courtesy of another member of Catherine’s sub-glottic stenosis support group and her husband, Lynne and Ron, and what a great vibe down on the wharf. We could get used to this!
Some browsing around the shops later we headed off on a tram across town to a discount shoe outlet, even the conductor wouldn’t take our money! It was quite an experience travelling up and down San Fransisco’s incredibly steep hills.
Lots of shoe bargains later, we walked back to the bay and hit an oyster bar – wow there’s some big fellas here and a very different flavour from what we’re used to in the Southern Hemisphere.
Dinner was an early affair (Catherine is feeling pretty beat with her airway so closed at the moment, and we had clocked up just under 12km (7.5 miles) on foot!). We had booked a Korean restaurant just down the road from our apartment and once again had some awesome food. California really has not disappointed.
This city is being so kind to us. I think she knows we have fallen in love.
The dog walkers were out in force, although this guy seemed to have his own pack very well trained.
A big walk back along the bayside and a lunch in the sun – I had been hanging for a crab chowder in a bread roll – and I got it! Sadly no dairy free version of that creamy number for Mrs A.
Off we marched again and caught the ferry over to Alcatraz for a superbly produced audio tour. Thanks to our Napa friends, Susan and Joe, who encouraged us to book the trip – it is not usually our thing to hang out in the crowds but this was great. I wonder how many of the 1 million visitors a year have sworn off a life of crime after seeing this place?
Now I have to admit we then committed a major faux pas for travellers and went back to the same Korean for dinner. Please forgive us, but we had seen another dish on the menu we both wanted and just couldn’t resist. We were home by 6.30pm (16km (10 miles) of walking under our belts today) and packed up ready for our early getaway tomorrow to Chicago. Wild things no longer.
We had a brief whirlwind of time to transfer our cases and food back into the caravan, dig out the smart clothes and get changed, before the four of us drove into Brisbane for the evening.
After this, we parted ways, Phil and Libby ending up at a pub helping celebrate a nephew’s birthday, while Mr A and I joined three lovely ladies for dinner in a French restaurant beside the water.
We have probably driven past this area a dozen times without any awareness of what’s here, but it’s a lovely rural settlement sat on the banks of the Clarence River close to the estuary. There are over 100 islands in the wide river here, the nearest to us being Goodwood Island.
The sun was starting to set so we only went a couple of kilometres, crossing over the bridge to Goodwood Island and checking out the wet sugar cane fields before returning for the evening.
More rain and thunder entertained us, a novelty after the dry and drought of the inland areas. Sadly, it seems the rain is sticking to the coast, not helping out the farmers this time.
We climbed up into a forest of spotted gums, the smell after the rain was just amazing. 
A very quick run back down the hill and we had made a great little loop ride (15km). I’m absolutely loving the new gears on my bike. A twist grip rather than levers which were so painful to use with my dodgy hand (touch of osteo). Mrs A struggled to breathe a bit on the hills but with her usual can do attitude just got on with it. She’s determined to not let this illness hold her back if she can overcome with the power of her mind.
