Working with the top surgeons around the world for idiopathic subglottic stenosis, Catherine has written Idiopathic subglottic stenosis: A Rough Guide for Beginners – a patient friendly document which explains everything someone with iSGS needs to know about the disease, its treatments, myths, what possible complications can occur and how to prevent these and much much more. It is updated biannually to include the latest learning and additional helpful advice for patients.
Please donate whatever you feel this book is worth via Catherine’s GoFundMe page . Money goes towards hosting this site, expenses for conference attendances and on costs related to patient advocacy work.
Click on the image below to download the latest version of the guide (updated December 2024):
If you would like to specifically focus on the new additions to the guide, they are highlighted in this version (click link)
Other language versions are currently still as per the October 2022 guide but will be updated soon:
If you would prefer to read the German language version, please click here
If you would prefer to read the Dutch language version, please click here
For the Spanish version, please click here
For the French version please watch this space – an update is being prepared!