Working alongside leading airway surgeons and researchers worldwide, Catherine has created ‘A Rough Guide to idiopathic subglottic stenosis’, a comprehensive, patient-friendly resource designed to support people newly diagnosed with iSGS.
The guide explains the condition in plain language, outlines current treatment options, addresses common myths, and explores potential complications – including how to reduce risk and recognise early warning signs. It also provides practical, experience-based advice to help patients navigate daily life with iSGS and advocate effectively for their care.
Updated annually, the guide reflects the latest medical understanding and incorporates new research, clinical insights, and patient-led learning to ensure it remains a trusted and relevant resource for the global iSGS community.
If you find this guide helpful, please consider making a donation of whatever you feel it is worth via Catherine’s GoFundMe page. All contributions go towards hosting the website, covering conference expenses, and supporting ongoing patient advocacy work.
Click on the image below to download the latest version of the guide (updated January 2026):
If you would like to specifically focus on the new additions to the guide, they are highlighted in this version (click link)
Other language versions are currently still as per the December 2024 guide but will be updated soon:
If you would prefer to read the German language version, please click here
If you would prefer to read the Dutch language version, please click here
For the Spanish version, please click here
For the French version please click here
