Patients: If you would like to contribute to research, please sign up to our Airway Stenosis Research Panel. You will then receive invitations to take part in upcoming online surveys. Just send your name to: airway.stenosis.research@gmail.com
Doctors: If you treat patients with iSGS and would like to be kept up to date with the latest papers and the most recent version of the Rough Guide, please contact Catherine via: idiopathic.subglottic.stenosis@gmail.com
You can follow Catherine’s research (as author or co-author) via her account on ResearchGate
Fundraising for research
Members of Living with iSGS are actively working to raise money for Dr Franco’s research into airway stenosis mucus and an international study looking at the impact of Serial Intra-Lesional Steroid Injections (SILSI). Here is the latest video from Dr Franco regarding this appeal:
Donate here: https://masseyeandear.donordrive.com/campaigns/ISS/
Research summaries
The top nine things we learned about iSGS and its treatment in 2024
The top seven things we learned about iSGS and its treatment in 2023
The top six things we learned about iSGS and its treatment in 2022
The top five things we learned about iSGS and its treatment in 2021
The top five things we learned about iSGS and its treatment in 2020
North American Airway Collaborative
Access to all most recent and relevant papers from member organisations on the topic of iSGS.
iSGS and pregnancy – a new report based on research conducted with the support group I run, looking at patient experiences and attitudes with pregnancy while dealing with idiopathic subglottic stenosis.
Patient-Centered Outcomes Research Institute
For airway stenosis patients (Doctors also welcome!): Living with Idiopathic Subglottic Stenosis Facebook support group
Idiopathic Subglottic Stenosis – A Rough Guide for Beginners – (Known as ‘The Rough Guide) – booklet for patients, registrars, students helping explain in simple terms all about iSGS, its treatment options and other tips on coping. Updated Dec 2024.
