4-6 October: A jaunt around the Outer Hebrides

Author: Mr A

Location: The Isles of Harris and Lewis, Outer Hebrides, Scotland, UK

The Outer Hebrides…I just like saying the name as it conjures up in my mind images of being really “out there”. Actually the reality is a bit different, but still very appealing.

We watched from the top deck of the ferry as the island of Harris appeared and our tiny debarkation point of Tarbert. Now, firstly lets clear something up. The island of Harris is joined to the island of Lewis. They aren’t seperate islands but are referred to as seperate. Make sense? No, didn’t to us either. There are various explanations given, like different clans distinguishing their own territory, or the geography in that a range of mountains makes access between the two difficult, or at least used to. We quite happily pottered from one to the other. So with that muddy water stirred up let me just add that the Outer Hebrides is sometimes called the Western Isles, and the main reason you might have heard of Harris (Harris Tweed) is mostly made in Lewis. All clear now?

So Harris is split geographically into the quite bumpy North Harris and the flatter South Harris. We were sort of in the middle when we landed at the dinky ferry port of Tarbert. So how do people in Tarbert explain where they live? “Well I’m in the middle of North and South Harris, in the Harris end of Harris and Lewis in the Outer Hebrides come Western Isles”? Perplexing…

Harris in red to the south, and Lewis to the north

I had called ahead to book us dinner at the Harris Hotel, using my usual gambit to secure a free night’s accomodation of “So we’d like to book dinner, but as we are travelling in a motorhome I wonder if you could advise of anywhere to stay within walking distance. We intend to order a decent bottle of red and are not keen to drive”. I know Tarbert doesn’t have a campsite. I got the response I was hoping for. “Well we have a large car park, feel free to use that if you would like”. Sorted…and £25 saved towards that bottle of red.

But our first stop was metres from the ferry point, the Harris Distillery. This imposing looking building was made possible through the combination of EU grants and the backing of a Scots born ex CEO of Monsanto. His US$77 million payout might have helped. You would assume a distillery in Scotland produces whiskey…nope..its gin. Gin has made them profitable in these gin fuelled times. They are distilling whiskey, but its not available for sale yet. We loved the gin. Apparently its differentiator is the sugar kelp (yup, seaweed) infused in their copper gin still, and gathered by a virgin diver (poetic license) from the pristine waters around the island. Great to see a business like this doing well in such a geographically remote corner of the UK.

One bottle of Harris Gin thank you very much…in fact we ended up buying two!
A modern tasting room inside a building that used to be a church
One of the distillers – clearly a cat lover so he deserves to be included here!

Well our dinner at the Harris Hotel was absolutely gorgeous, everything that had been missing on Skye. A friendly barmaid welcomed us, the atmosphere was cosy, and the food….scrumptious. After a quick perusal of the menu, with no conferring, we both as usual made exactly the same choices. Too much time together harmonising our tastes? Locally caught herring for entree, followed by the plumpest scallops I’ve ever seen, with locally grown veg that tasted like it had been dug up that afternoon. What a feast. Our first meal out since Edinburgh. We tried hard to eat out in Skye but nothing tempted.

Look at the size of those scallops! Delicious!

The one time we went out in Skye intending to eat, the barmaid (we later learned also licensee) was so rude we had one beer and left. Disappointing…but Harris delivered in spades. I wonder why Skye was so poor? Other friends who visited had said the same. Too many visitors and not enough incentive to try hard? Who knows…

The next morning we headed off to explore South Harris, known for its spectacular sandy beaches. Apparently an advert for a Thailand holiday destination was caught using a shot of one of them. They were beautiful, but we only had to step out from behind the glass of our windscreen into the biting wind to be very clear we were not anywhere that either of us was going to be going for a paddle.

Incredible colours, you can see the inspiration for the Harris Tweed
There are more wooly residents on these islands than people
One of the many magical views
Just birds on these untouched beaches, perfection

We stopped to buy some home made mustard from a roadside stall, then paused in amazement when we saw the price. £6.50 (AU$12)for 200ml jar! I’m all for supporting local businesses but hard to feel that was value for money, so sorry mustard maker, we will make do with the beautiful small batch seeded mustard we brought in France for a quarter of that price.

Down at the most southerly point of Harris – we wondered what life is like for the residents of this little house with a fine view
Peat bogs are plentiful and there is much evidence of it being dug for fuel…here on an estuary it looks like little islands
As the rain and wind sets in for the afternoon and we head north, the scenery changes
More atmospheric scenery as we head in to Lewis

The edge of the bad weather that has been drenching the UK caught us, the rain came down and so we spent longer than usual in the car driving up through the island (islands?) to Lewis. I was keen to visit the standing stones at Calanais, or is it Callanish Standing Stones? They are variously named and spelled differently just to keep us visitors on our toes, even after we have worked out the whole Harris and Lewis thing. Anyway, another one of those mysteries I love, with archeologists mystified about the significance of the location and function of these other circles in the area. In fact this one isn’t even really a circle, but flat on one side. So for 5,000 years the people who have lived here have been trying to mislead and confuse…I like it.

Trying to read the messages of the stones
There is certainly a particular atmosphere here
Are they meant to be seen as giants from the sea, here to scare off the Vikings? Or are they a ceremonial meeting place?
We marvel ant the centuries of stories these stones could tell, if they could only speak

We dutifully watched the video in information centre and left no wiser understanding what the people who once put so much effort into dragging around these stones were trying to do. Its a bleak old place today, and we weren’t outside that long before hot chocolates back at the visitor centre seemed the wise choice.

The site we had been trying to call to confirm a place for the night had not been answering the phone, so we just rocked up to see a closed sign on the signpost! We had checked their web site and Google page – nothing left to warn people. OK we were pissed. How long does it take to record a message on your phone saying “we are closed for the season”, or change your Google Maps entry? Clearly too much effort for these folk. However, there was a free spot marked on one of our apps just down the road, and check out this view!

Our own private car park and beach
The view from our window

We had it all to ourselves while the rain lashed down and the wind howled. Our LPG run heating system got a workout, and a Thai jungle curry from Mrs A warmed us from the inside out and a Harris gin went down a treat.

Our local beach on a morning stroll, Truffy in the background

So another £20 in camp fees saved. We are warm, dry and have enough power from our 12v system to run all we need and can have a lovely hot shower in the morning without venturing across a campground in the cold and wet. I just have the job of emptying our toilet somewhere tomorrow. Not a bad trade for a lovely view and a few extra pounds to spend. In places that don’t have “No overnight camping” signs on every piece of flat land, it is quite lovely.

Our final day in the island of….well lets call it Lewis, although when we arrived in Stornaway this morning, the castle was called Lews Castle. the mystery continues. We have a mooch around the harbour in the drizzle, all rugged up and wondering where all the people are going as there’s not a single place open in town…except the church. Well its been a long time since I’ve witnessed this, people are dressed up in their Sunday best, three piece suits, ties – the lot, and going to a service of some kind. Ah well, each to their own. We make our way down to the ferry wharf and trundle Truffy on. He’s getting to be quite an experienced ferry traveller now!

Stornaway harbour looking colourful on this gloomy Sunday morning
Wrapped up warm against the drizzle but still smiling
We stood and watched a seal fishing in the bay in front of us

Goodbye Outer Hebrides, welcome Western Isles, its been an experience we will always remember, even if they like to keep you guessing out here 🙂

Lewis Castle front and centre as we pull away from the island of Lewis
Our first sight of the mainland of Scotland
We are first vehicle off into port – welcome to Ullapool, Scotland….

3-4 October: The Isle Skye continues to bewitch us

Author: Mrs A

Location: Neist Point Lighthouse, Dunvegan Castle. Portree, and Uig, Isle of Skye, UK

Sunrise on Thursday morning was a pink affair, complete with a seal fishing in the loch just metres from us. It was also about 7 degrees centigrade, so we just admired the wildlife from the warmth of the camper.

Good morning Skye! The two people on the beach in front were watching the seal too
A fine start to the day – red sky in the morning, shepherd’s warning…or so they say

We decided to drive out to Neist Point Lighthouse, supposedly spectacular walking and amazing views. The road out there, as we have come to expect on Skye, was single track and rather potholed, with some extremely narrow passing spots, often leaving us teetering on the edge of a steep drop. Mr A used every ounce of strength to overcome his fear of heights (and fear of us toppling down a precipice!) to skilfully guide us to the coast.

Narrow and twisty road, often heavily potholed and always single track, it was slow going but stunning scenery

Once there, we stepped out into gale force icy wind whistling off the sea, and I almost leaped back into Truffy to shelter. A stern look from Mr A told me I needed to at least sight the lighthouse before we drove back along that road! Wearing almost every warm thing we own, we picked our way along the cliff top to admire the spectacular coastline. Steep plunging cliffs, a combination of black rock and green foliage, heading down to a deep turquoise sea, covered in the white caps of rough windswept waves greeted us – just incredible.

Can barely remember how cold my fingers got minus gloves photographing this idyllic scene
Is that a smile or a grimace?
It really is a special bit of coast

Walking in the other direction, we found the views down to the lighthouse, deciding the forego the path that takes you down to its front door. It is absolutely breathtaking, even when viewed through eyes streaming with tears from the chill wind.

The colours are spectacular. Neist Point Lighthouse, full frontal to the wind.
So windy my hood is blowing up…and I appreciate the warmth around my ears!

We didn’t hang around, musing at how an opportunity has been missed here by the community of Skye. Surely a clifftop cafe with nice warm double glazing serving steaming mugs of hot drinks, and selling locally made woollen gloves and beanies would make an absolute killing here? We certainly would have been a couple of willing customers.

We made our way back into Dunvegan and the privately owned Dunvegan Castle and gardens.

Dunvegan Castle – developed piecemeal between the 13th and 19th centuries

This has been home to the chief of the MacLeod Clan on Skye for 800 years. Towers and walls were put up over the centuries on this castle with no thought to the overall look and feel of the place, until the 1800s when the then then chief of the MacLeod Clan decided to ‘bring it all together’ rendering the outside and adding the more ‘castle-like’ features of the building such as drawbridge entranceway and canons pointing out into the Loch.

The current clan chief still lives in the castle, splitting his time between here and a house in London. The upper two floors remain locked and private, but we were able to explore the lower floors, well preserved and containing centuries worth of antiques and relics.

These walls could tell a few stories we’re sure

We were left to our own devices to explore the castle, its various towers and dungeons, the different centuries of rooms and stairwells quite evident.

This is a relic of what was known as the ‘Fairy Flag’ – apparently dated back to somewhere between the 4th and 7th centuries, legend has it this contains magical powers and was often used in battles to help scrape victory when defeat was imminent
I spy a familiar view in one of the rooms, seen in the background of a portrait of the previous MacLeod clan chief who died in 2007
We had a short tour of the gardens
Plenty of colour left in the gardens with an extensive team of workers constantly there

We drove across the island to Portree, where we settled down in a campground for the evening.

The following morning we drove into Portree for a look around, finding it to be a sweet little fishing town. The first port of call was a friendly outdoors shop, and within 15 minutes I was kitted out with a Marino wool neck scarf, a nice warm bobble hat and some windproof and waterproof gloves. Finally I was suitably attired for the Scottish weather!

Nice and warm – makes a huge difference!
Loving this little harbour
A beautiful clear morning

The UK and Ireland are taking a battering weather wise with plenty of rain and wind – the remnants of Hurricane Lorenzo, an Italian sounding storm which has been whipping things up off the coast of Africa and moving steadily in our direction. We thought we ought to take advantage of the fine weather and hit the road.

Amazing views up the east coast of Skye towards the ‘Old Man of Storr’ – a pinnacle of rock which can be seen for miles around

We followed the east coast, stopping to admire the spectacular views. An Cailc was an interesting location near where there used to be a diatomite mine (a clay-chalk like substance which goes into making dynamite, paints, polishes and even filtration for beer). Now there are just a few ruins of what was a major industry in the late 1800s and early 1900s, with the mine closing down in 1960.

The cliffs look like they have been covered in green felt!
Looking inland towards the Quiraing, an area popular with hill walkers
Mr A enjoying the view from the safety of behind the railings
One of three waterfalls plunging their way down to the sea

We took our time enjoying the view but choosing not to take the steep and slippery walk down to the base of the waterfalls, before continuing on our way around the coast.

Again, single track roads with amazing views

Reaching the top of the island, the road hugged the cliff, turquoise waters on our right and rolling greenery on our left. The colours can only be described as delicious and the scenery and road among the most beautiful we have seen.

Must be one of the top coastal drives in the UK

We had decided to investigate staying longer in Scotland’s western isles, having been absolutely bewitched by Skye. We have seen a lot but not everything, and the island has more to offer us in the future. We headed to the little village of Uig, from where we knew we might be able to catch a ferry to the island of Harris.

Our travel route around the Isle of Skye

It was meant to be. I managed to get us on the 14:10 sailing from Uig to Tarbert and we joined the queue.

Driving onto our fourth ferry since May
Farewell to Uig and the Isle of Skye

It was a gentle couple of hours’ cruise over the inner seas off the West Coast of Scotland and time went quickly.

Lovely scenery to keep us occupied on the crossing
Lovely views of the coast of Skye as we depart

Before long we were sighting small islands and rocky outcrops again as we approached the island of Harris, home to Harris Tweed. The story from here will be over to Mr A, which he will share soon…

We really enjoyed our time in Skye, made all the more special by the fabulous weather. We know we were very lucky on this occasion – but please don’t be put off by the potential for cold or wet weather. It is a spectacular part of the world regardless.

Our first view of Harris
Adventurer extraordinaire…another day another island…

30 September – 2 October: Walking in my parents’ footsteps

Author: Mr A

Location: Broadford and Dunvegan, Isle of Skye, Scotland, UK

Scotland…the part of the British Isles that my parents fell in love with and retuned to for so many years of wonderful holidays, bird spotting, walking the hills when they could. To visit here and see some of the same places they must have gazed at in wonderment, as we are, is quite special.

Being stuck behind this truck carrying wood for several miles gave us a chance to admire the scenery

I’m an only child, no brothers or sisters to help keep memories alive, my daughters help me in that regard, but I’d love to just have one more conversation with my parents and ask all the questions I never asked when I thought they’d be here forever.

On the road over from the central highlands to the west coast we rounded a corner and there was this stunning sight to feast our eyes on.

A view that has remained relatively unchanged for hundreds of years
Incredible reflections
Skye is certainly showing us her best side with this incredible clear weather

Did my mum and dad see the same? Sadly I will likely never know, although I will be poring though my mum’s diaries when I go back to Australia. It’s a an evocative moment. Eilean Donan Castle is one of the more photogenic places we have set eyes on, almost rivalling the vista across Lake Bled in Slovenia for having all the ingredients that make us go “oooh”. Dating back to the 13th century, it was built to fight off the Viking invaders, then as a superb defensive position for warring Scottish clans. It even saw a group of Spanish soldiers assisting in the Jacobite rebellions use it as a base. It has been lovingly restored after being left in ruins for several hundred years, and now features in selfies from the coach loads of tourists pulling up to admire its beauty.

We arrived on the Isle of Skye via the road bridge that was opened in ‘95, and I could just hear my dad saying “Look Jill, look at that!”, as he nudged her in the ribs, seeing the soaring peaks of the island’s Cuillin range dropping down into the deep blue waters of the surrounding sea.

Our first view of the bridge and the Isle of Skye in the distance
Crossing over the bridge, wondering whether dad drove this exact same path…

We had identified a campsite on the edge of the small town of Broadford, which straddles along a wide bay and river mouth. It was time to pull on the walking shoes and head for the hills. But first of course the flask needed to be filled. I am clearly walking in my father’s footsteps in this regard as well. At one point he was a 15 cups of tea a day man, a little too much caffeine me thinks…we stick to the caffeine-free herbal variety.

Beautiful views out to sea at every turn
The delicate pink of the ever present heather adds a splash of colour to the green
More lovely views as we reach the next bay
Heading inland through a million shades of green
The next bay around is equally unspoilt
With every cloud the scene changes constantly
Local lady Isabel needed a hand with 15 year old Lucy who decided she wasn’t up for walking any more

The views were out to the mainland and across some small outlying islands, with tiny cottages on them, for fisherfolk I assume. It’s wild and wooly country and we love it. We didn’t strike as lucky though going into town to try and find that stereotype of the welcoming Scottish pub, complete with fiddle player. Instead we found a horrible place with slot machines and widescreen TV showing the football. Ah well…perhaps the next town?

The next day also dawned clear in the morning, apparently its been a very wet late summer, so the locals are finding this showery autumnal weather “quite nice”, wandering round in shirt sleeves when its 10 degrees. Being unused to what feels to us like sub-arctic temperatures we are all rugged up I can tell you. Catherine was busy writing up her notes from the conference she attended, so I grabbed the opportunity to head out on the bike for a ride. And what a ride it was, through scenery that made it one of the more memorable I have ever done.

My little Tinker and the cool but stunning scenery
Love where this little bike can take me

My iPhone and lack of skill with its camera just dont do it justice, and when returning back to Catherine I was so enthusiastic about what I’d seen we agreed to drive it the following morning. Later in the afternoon we took a stroll around the shore of Broadford, apparently the site of a Neolithic settlement (12,000 – 6,500 years ago) and many burial mounds, several dismantled over the years to use the rocks for houses and walls.

Looking out towards a fishing trawler in the bay
I wonder how many people over the past 12,000 years have admired this view
The clouds provide an ever changing scenery

Tuesday morning we retraced my stunning cycling path along the road from Broadford to the isolated road’s end at Glasnakille, a collection of a few houses, tiny primary school and a boat shed offering tours up the coast.

The blue skies belying the freshness of the morning
The Church of Christ (Cille Chriosd) – built in the early 1500s – it was superseded in 1840 and has since fallen to ruin
The single track road with a passing point ahead
The sheep are grateful for their wooly coats, at 10 degrees, it’s quite a brisk autumn day
A lovely spot for a tea break
The wind whistled across the water as we stood and admired the Cuillin Hills
Looking out to Cuillin Sound as we drive down the hill towards Glasnakille
A lovely Robin followed us on our walk through the tiny village
The little white building on the right is the tiny little school – we saw around 6 students chasing around the playground
Mrs A loving the scenery from behind glass!
The sun peeps out from behind a cloud, highlighting the hills for mere seconds before moving on to another location
There’s a bit of slow moving traffic on the road, you cannot be in a rush here

These end-of-the-world places have a magic feel to them. The road was single track, windy with a few unprotected drops into an icy looking ocean, but I’m a lot more confident driving Truffy knowing what he and I can tackle together.

We wandered up the coast, and ended up at the Talisker distillery. Now I’m a fan of bourbon, but have never managed to acquire a liking for that smoky single malt flavour of whiskey, but I keep persevering.

The oldest distillery on the Isle of Skye, Talisker has been here since 1830
Medicinal purposes only, at £55 a bottle we didn’t purchase

We tried a couple, I’m still not convinced, Catherine was pretty neutral as well, so no purchases made.

It was another drive round the coast until we found a campsite in Dunvegan with a lovely view across a loch. A little amble round the village revealed a few places to eat but nothing that really grabbed us, a pattern that’s emerging in Skye.

The walk into Dunvegan from our campground

Well, I hope my parents did see this part of Skye, it really is quite stunning. I’m going to tell myself they did and picture them sharing the pleasure we feel in seeing nature at its most scenic.

Truffy’s home for the night in Dunvegan
Sunset across Loch Dunvegan

28-29 September: Heading north through the Scottish Highlands

Author: Mrs A

Location: The Hermitage, Dunkeld & Invergarry, Scotland

Let me start by saying a huge thank you for all the many messages of support and appreciation after Mr A’s thoughtful and amazing post yesterday. I’m feeling very warm and loved indeed! I had a great time at the conference in Edinburgh, made lots of new contacts and reconnected with those I have met and chatted to before. There’s much more work to be done in the future – I am helping with a couple of research papers and helping give advice to PhD students in the UK and USA working on research studies with iSGS patients…and another conference to attend and present at next year as well – so definitely keeping myself busy in the downtime.

After all the excitement of the conference in Edinburgh we decided to continue on our way, and Saturday morning saw us pointing our nose towards the Isle of Skye. While theoretically we could have driven there in a day, we decided to see some places on the way. I did a little research and found a National Trust place called The Hermitage.

Beautiful shades of green

The Hermitage was created in the early 1800s by a duke who wanted to honour a blind baird. It was part of the designed landscape of Dunkeld extending from the River Tay along the River Braan to Rumbling Bridge, a distance of approximately 1 mile (1.5km). It’s a beautiful woodland area and we read it was accepted for motorhomes to park up here overnight.

We soon leave most of the visitors behind and the path ahead is all ours

We decided to do the 8.5 km circuit walk from the car park. It wound through beautiful woodland of Douglas Fir trees (the tallest trees in the UK) following the River Braan. The river roared alongside us for much of the hike, punctuated by the odd splash which may have been salmon swimming upstream, as they apparently do here at this time of year.

Wonder what the story is with this tree full of money
Beautiful looking fungi…I wonder what is edible
Briefly warm enough for bare arms!
Black Linn Falls
Magnificent rapids
A brief moment of zen
Water plunging over the rocks
Sunshine through the woodland
Water slicing through the countryside
Country lanes
The path crosses through a farm with spectacular views across the green countryside
Getting late in the day
New shoes getting a good workout
Crossing fields
On the return loop
Moss of many colours

The Braan circuit was one of the loveliest walks we have done, and highly recommended if you’re heading in this direction.

After a peaceful night’s sleep we headed off on Sunday morning with a similar plan – aiming for another free overnight location beside another river with some more walking.

Dramatic skies at our break for a look at the Commando Memorial near Spean Bridge
In recognition of the services of the commandos who trained in the Scottish Highlands for WWII

This time we headed for a spot beside the River Garry, just down from Loch Garry. It sounds like a comedy name (where are Loch Kevin and Loch Darren we wondered?) but oh so picturesque. This is located just north of Fort William where we stopped for some food shopping on our way.

When in doubt do both walks – they were both lovely!

After parking up we put on the walking shoes again and set off for an explore. We were rewarded with another spectacular circuit walk, 7.5 km of scenery worthy of Lord of the Rings, moss carpeted woodland, the river Garry babbling alongside us for much of the way.

Delicate pink heather in all directions
Thick lush moss carpets every surface giving the forest an ethereal feel

Other than a group of wild mushroom pickers(!) at the start of the hike we were by ourselves for the whole walk, a lovely magical experience.

Bridges cross streams lined with dripping ferns
Native fir trees on parade
The sound of rushing water accompanies us on much of the walk
A mossy green path scene awaits us around every corner
A huge waterfall plunges over a cliff into the valley below
Steps climb up beside the waterfall, taking us to the next level
We wonder where all the Hobbits are…never seen a landscape quite like this before!
A telegraph pole factory?

All visitors were gone by 5pm, leaving us to a peaceful night with just the sound of the water for company. Just lovely.

The River Garry, lulling us to sleep

This is surely what makes travelling in the off peak period so appealing – the ability to park up somewhere spectacular, enjoy the scenery and serenity as though it were your own. And having our home with us, this is absolutely possible.

We are often asked whether all this travelling gets tiring. We have to answer no. While there are some downsides (missing our friends, family and fur child) the upsides are many. If we were having to live out of a suitcase and unpack and repack on a regular basis, it would be tiring. But in our case, we have our own comfortable bed, with our own pillows and bedding, our clothes are always on hand, and we can cook, eat and drink whatever we like with our own pots and pans, herbs, spices and ingredients. The main thing that changes is the view outside our window, and that’s just the way we like it.

25-27 September: Mrs A – making a difference

Author: The very lucky Mr A

Location: Edinburgh, Scotland, UK

As I write this blog the lovely Mrs A is standing in front of a room full of super smart top surgeons and other health professionals from around the world at the “Cutting Edge Laryngology” conference in Edinburgh this week, presenting on how the rare disease she suffers from (idiopathic subglottic stenosis) has impacted her life, and how she has fought back.

Catherine attended at the invite of Gemma Clunie, Clinical Specialist in Speech and Language Therapy at Charing Cross Hospital where Catherine is treated in London (Photo by Dr Justin Roe at the event)
Using metaphor to communicate what it is like to live with idiopathic subglottic stenosis (photo by Dr Camilla Dawson at the event)
Concluding with the power of nature to communicate how it feels to have your own body slowly suffocate you (Photo by ENT & Audiology News at the event)
A snippet of some of the incredible messages onTwitter for Gemma and Catherine’s presentation from medical professionals attending the session (Mrs A’s alter ego is @SparkySparkler)

For those unfamiliar with her story, she was diagnosed 15 years ago with this disease, and that was after several years of misdiagnosis. Being a researcher (a geek she bashfully says with that lovely smile) she turned to the internet for answers on how the disease is triggered (what had she done “wrong” to deserve it?), what treatment works and how to access it, and how to manage your life in the interim. There was almost nothing out there at the time, so in October 2009 she created a Facebook support group to see if she could connect with other people struggling with the same dearth of information.

Well after a slow burn, almost a decade later the group is now approaching 3,700 strong, thanks to endless hours of her nurturing and managing it and providing 24×7 support to fellow suffers around the world. Those who want and need to reach out and chat with others who are equally mystified, scared and often depressed about the lifestyle and health implications of having this life threatening and lifestyle inhibiting disease. In addition the group helps enable research into causes and treatments sponsored by medical universities, again something Catherine has driven and managed.

Idiopathic subglottic stenosis restricts the airway through scarring that builds up in the trachea (with no known cause) and creates difficulty in breathing. Sufferers just cant get enough air through their airway to function. The severity of their symptoms is dependent on how narrow the airway becomes, ranging from an irritating shortage of breath, to a blockage resulting in death. The rare disease affects 98% women – two in a million.

www.facebook.com/groups/IdiopathicSubglotticStenosis

What I want to underline though is the how the glass is always half full for some people, and Catherine is the perfect example of that. She could have sat back and accepted she was a “victim” of this disease, given up exercising, given up trying to find out what causes it. But she didn’t, and I think it’s an inspiring story for others.

When we are out and about on our wanderings around the world she seeks to connect face to face with the people she has got to know online. I’ve been at a number of these meetings over the years, and I can tell you I have heard them say thank you for everything from saving their lives, to saving their sanity. We’ve had some amazing experiences as a result of connecting with these people, and I guess that’s one big reinforcement for me that if you give of yourself, as Catherine has, you are rewarded in so many unpredictable ways. I think the most valuable for her is the sense of contribution that she is making. Most studies on happiness will point to a key driver for people who describe themselves as experiencing that elusive state of happiness as having a network of relationships in a community (work family or other) that value that contribution. That’s what she has created though her voluntary work, and its a credit to her.

Some of the lovely people Mrs A has met over the past decade through iSGS

The upsides of creating this group just keep rolling in, none of them looked for at the beginning, and none drive her now. For instance, we have met so many members of her group now in different countries. In Australia, New Zealand, the UK, in the US, Netherlands, Germany and Austria, all who have been so welcoming of us and help make our travel time in their country so much more enriched with local knowledge. We’ve made new friends and had an insight into lives across the world we never would have had otherwise.

Also the medical community that she has got to know have also been truly inspiring for her. They work so hard to help their patients, with often little feedback on when they succeed. She’s met some fantastic people this way as well, and all the emotionally richer for it.

I attended one of the social functions of the conference earlier in the week and watched Catherine working the room, talking to these medical experts, building her network, and ensuring that she is in the best possible position to continue to get their support when she needs it, to help out one or all of her group. She was awesome.

Mingling with a glass of bubbles

Illness rarely has an upside (or does it?), but she has made one in this case. I’ve watched her develop new skills, and leverage, deepen and broaden her existing ones.

So that’s really want I want to say, that Catherine is a model for me of the potential “up side” of being unfortunate enough to suffer from an illness and I am constantly learning from her how to be more positive when life sends its little curve balls. Also that social media is a tool, to be used like any tool – to help or hurt.

Thank you to everyone who supports her in this voluntary work, whether by words of encouragement on the Facebook group, or friends who give her a nod to the time, dedication and perseverance it has taken. Give her a big round please.

24 September: A flying visit to County Durham

Author: Mrs A

Location: Barnard Castle, County Durham, UK

The luxury of time and having our own means of transport and accomodation has allowed us to visit friends we would otherwise not be able to catch up with. I was excited to be able to see my lovely friend Claire. We haven’t caught up for two years, and I have never been to County Durham where she grew up and now lives with her son Adam.

Once again we were grateful Truffy is a shorter motorhome, as we were able to park right outside Claire’s semi-detatched home in West Auckland. We had a lovely evening of catching up over dinner and met Adam for the first time (now 11 years old!) without the worry about driving or finding a taxi home.

Gorgeous, smart and funny like his mum

The following morning we joined Claire in dropping Adam off at school, and she then drove us to Bowlees in the North Pennines where we did a walk. Being so early in the day it was lovely and quiet, and the rain mostly held off, leaving an atmospheric mist hanging over the countryside.

Loving being out in the countryside, a short drive from Claire’s home

Our first point of interest was Sumerhill Force and Gibson’s Cave on Bow Lee Beck, a tributary of the River Tees.

Bow Lee Beck, looking a little brown after the night’s rain
C & C
Summerhill Force – behind which is Gibson’s Cave – legend has it a Mr Gibson escaped the law and hid here supported by locals in the 1500s…
Bow Lee Beck, looking up towards the falls

We next did a circuit walk across the fields, through the misty scenery feeling very Wuthering Heights!

Which century is this image from?
Mark and Claire walk up a hill…Claire proving she is more warm blooded than us!
Continuing on our exploration
Footpaths and styles peel off in all directions, heading to unknown destinations
We make our way down to Low Force, the lower of two major waterfalls and sets of rapids in this area on the River Tees
Gorgeous old mossy trees,

Low Force Falls were roaring over the rock, giving us a fraction of the view we would have seen had we seen High Force Falls too. We were running out of time and High Force Falls required a ticket to view. We decided to save those for our next visit – and there will be a next visit.

Thundering water
The River Tees rushing through Teesdale
So pleased the rain held off (mostly!)
Off through this tiny gap in the wall and across the field back to the visitor centre

It was so lovely to see Claire like this. A chance to just walk and talk and reconnect outside of the usual crowd of friends. As lovely as that is, this has been far more intimate and precious. In addition, Claire has introduced us to some beautiful scenery, her local town, Barnard Castle with lots of walks, interesting shops and pubs, and of course a castle (ruins!). It’s such an interesting area, with the added bonus of a good friend. We look forward to returning in the future and exploring further.

We finished off our walk with tea and cake in the visitors centre as the threatening skies decided to fully open. We’ve rarely seen rain like it – the roads turned into treacherous rivers and the windscreen wipers on double speed, often unable to cope.

After saying goodbye to Claire, we jumped into Truffy and pointed him north through the rain, aiming for Edinburgh, Scotland.

21-23 September: A first taster of the Yorkshire Dales

Author: Mrs A

Location: Jervaulx, Richmond, East Witton and Middleham, Yorkshire, UK

Our accomodation was located beside an old 19th century house, Jervaulx Hall, which has the ruins of an old abbey on its land. Mr A, our friends John and Catriona and I had decided to take advantage of the fine weather to do a long walk, starting at Jervaulx abbey, just around the corner from where we were staying.

Jervaulx Abbey – Cistercian abbey dedicated in 1156 to St Mary

Substantial work has gone into ensuring the ruins are safe for visitors, given the abbey is privately owned and managed. The grounds are well cared for, giving a balance between sculpted lawns and natural wildflowers.

Old doorways frame lovely views across the countryside
The walking team looking fresh and energetic at the beginning of the day
Buddies since the age of 12, John and Mark loving the walk…but don’t mention the chilli-red shorts!

We did a fabulous walk, taking us across bridleways, footpaths, across styles and down quiet country lanes. The scenery changed all the time, ranging from green rolling hills with almost-too-perfect trees dotted throughout, through ancient woodland, across rivers and into little villages and past castles.

We felt so privileged to have such a glorious autumn’s day
Our path winds through harvested fields
Reaching our first village
Blackberries to sustain us on our journey
Giant stepping stones across a river
Crossing a style in an old woodland
Just loving the scenery
A lovely autumnal scent hangs in the air, a mixture of moss and decomposing leaves

We’d walked about 17km before we reached Middleham Castle, a welcome sight given we hadn’t eaten breakfast and it was long past midday!

We smell lunch in our future…
Middleham Castle – built in 1190 and the childhood home of Richard III

We found a suitable pub in the village which was still serving food, and ordered refreshments. There was a brief discussion about getting a taxi back, but we bravely pushed on.

Mr A shows a burst of energy seeing the pub!

We concluded our walk having clocked up 21km (13 miles) the longest we have hiked in a while, (but paling into insignificance when compared with some friends who are managing upwards of 30km daily). We all felt we deserved dinner at the local pub that evening.

Sunday was more of the Yorkshire weather we had expected, the clouds hanging low and grey. After a fine full English breakfast we all drove over to the nearby town of Richmond.

Strolling the streets, still displaying the flowers of summer

Richmond was founded in 1071 by the Normans who built a castle in the town – there are castles all the way up England built by William the Conqueror’s people – this within five years of the Battle of Hastings. The town built up around the castle and looks like it has changed little in that time…other than the cars – the town centre full on this Sunday afternoon. We wandered down to the river.

Mr A and the lovely Catriona
It’s been a while between cat photos – this little chap was begging for strokes from everyone
The River Swale
The mist hanging over the River Swale
The waterfalls tinted with the tannins of autumn leaves
It doesn’t take long for the rain to start again

After the rain started we found shelter in a tea shop before a fun evening back at the apartment.

The sun returned for Monday, our final morning in Yorkshire. Catriona found a walk a short drive away in the village of Wensley.

The entranceway to Bolton Hall, a grand driveway with gatehouse
Bolton Hall – built in the late 17th centrury
Still some autumn colour about
Loving the autumnal day
A beautiful wizened oak tree beside the River Ure
More autumnal colour – rose hips and acorns
Walking team
Bolton Castle – 1378-1399

It was just a 6.5km walk this time, a chance for some fresh air and to stretch the legs before we bid each other farewell and went our separate ways, John and Catriona going back to Nottinghamshire while we went further north into County Durham.

It was a fantastic three days in North Yorkshire, giving us a taster of the beautiful walks and scenery there. We loved the villages, the culture and endless miles of hiking options. This is one area we will definitely be back to visit.

18-20 September: Exploring northern England

Author: Mrs A

Location: Harby & Newark-on-Trent – Nottinghamshire, & Ripon -Yorkshire, UK

Wednesday: We left Milton Keynes early and by 9am were in Newark in Nottinghamshire dropping Truffy off at our dealer for some warranty work. One of the reasons we love Fuller Leisure is that they’re a small, friendly family business, and they don’t hesitate to loan us a little runabout for the period of the service. We took the opportunity to drive into Newark-on-Trent, just a 20 minute drive from the dealer.

The castle has stood here for over 900 years

We knew nothing about the town as we drove in, but almost immediately saw Newark Castle ruins alongside the River Trent. It’s extremely picturesque, and given it has free entry we couldn’t resist an explore.

The castle was partly destroyed in 1646 at the end of the English CIvil War
Mr A wondering at all the people who looked out from this window before him

Leaving the castle we wandered into Newark’s market place, delighted to find it bustling with market day activity. We picked up some fruit and vegetables before exploring the rest of the town. We just love to buy produce fresh from the local farmers, appreciating the fresh taste as well as the opportunity to support local suppliers rather than supermarkets wherever possible.

Newark Market Place being used as it should be

After some shopping we returned to the car and drove up to our friends’ house in Harby for the night. There we had a delicious meal and shared some of our wine purchases from across Europe….enjoyed post a glass of the 1066 Hastings gin we gifted to Catriona.

Sunset across the countryside as seen from John and Catriona’s back garden

Thursday: My cousin’s daughter Hannah has just started a law degree at Lincoln University, just a half hour’s drive from our friends in Harby. Mark and I decided to drive up there to buy her breakfast and ensure she’s settling in alright. Lincoln is a small and friendly city, reminding me of Chester where I spent my university days.

The view from Hannah’s student room, uninterrupted up to Lincoln Castle and across the canal, walking distance into the centre of town.
Breakfast in Lincoln
Lincoln is a busy buzzing city on this Thursday morning

After farewelling Hannah off to a lecture, we drove back to Newark to pick up Truffy.

Dave debriefing on all the work they’ve completed
Happy customers with Dave ‘Always a pleasure, Fuller Leisure’…

We were amazed how much the team had completed in a relatively short period of time, consistently good. By 3pm we were on our way again.

When you grow up in the far south of England, anything past Watford Junction seems a long way away. Yorkshire, for example always appeared to be a mysterious place with lots of green on the map where people talk with the most intelligent sounding accent in the UK.

Nearly 300 miles (500km) apart – Sussex where I grew up and Yorkshire

So when our Nottinghamshire friends agreed to a weekend away in an AirBnB together in Yorkshire we were quite excited. Mark, Truffy and I skipped our way up the country, arriving in the city of Ripon on Thursday evening. There’s a carpark right in the middle of the city near the cathedral and Sainsbury’s that allows free overnight parking for motorhomes, and £2 for parking all day. It suited us perfectly and we settled in.

Truffy’s home for the night

After a peaceful night’s sleep, we decided to stick around the next morning and explore Ripon. Ripon is the oldest city in England and the smallest city in Yorkshire.

Not seen this many phone boxes
Mr A does a little ‘Black Sheep’ shopping for the weekend (locally brewed ales)

Ripon Cathedral was originally founded in the 660s by Scottish monks and tweaked and adjusted over the years.

Ripon Cathedral

Today it is still a living and active space, with lots of activity and full of people. Despite being an autumnal Thursday morning outside of the school holidays it was busy and bustling with an art and sculpture exhibition. I couldn’t resist a look.

Arches and stairwell to the sculpture exhibition
Many tours around the cathedral going on concurrently. A fabulous space with lots of light for the exhibition
Dating to 1789 a building beside the cathedral is now used as a hotel

Not far from the cathedral is a river and canal, so Mr A and I decided to stroll down. The canal was originally opened in the 1700s and restored in 1996. Today it’s clean with a walkway alongside it with several bird hides looking out towards wetlands.

The River Skell
The Ripon Canal
A bit of birdwatching
The wetlands
Mr A crossing over the canal on our circuit walk

We had a great afternoon’s walk around the waterways before returning to Truffy. We drove off to our AirBnB near Jervalaux Abbey to check in and await the arrival of John and Catriona as the sun set. A great first day in Yorkshire. We will be back!

Sunset
Truffy relaxing outside the Old Hall
Our accomodation at the Old Hall

15-18 September: Spending time with family

Author: Mr A

Location: Milton Keynes, Buckinghamshire, UK

We never get lessons on how to be a father. Some people just seem pre-programmed and naturally adopt the role, bringing their very best self to the challenge. Other people, like me, have found it a bumpy road, with many a stumble on the way.

This trip back to the UK has given me the opportunity to spend time with my daughters, my grandchildren, and my wife’s and friends families. It’s been precious time, where some of the most poignant memories of our whole trip have been formed. To see both my daughters turn into such incredible mums has been an absolute joy. To see how they have faced every challenge (and there have been many) head on and powered through. I’m so very proud of them.

Luke and James on the school run with Granddad

Parenting in this digital age seems have some unique opportunities and risks. There is never a shortage of on on tap entertainment for the “witching hour” when fractious little ones can be offered a screen to calm them down. But how much screen time do you give them? Are any taps being tuned off? The imagination required to entertain themselves? I’m certainly not qualified to answer that question, but it’s one I see many parents posing themselves.

As we supplement our face to face networks with digital ones, I think that also provides new opportunities and risks for parents with young children. Is the screen time an opportunity cost for building face to face friendships out in the street, or do the multi-player game platforms replace that? How do parents ensure there’s a balance between sitting and moving around? I watched my four grandchildren spending time together racing around screaming with joy and I know where I would put my bet.

There are some difficult choices for parents to make, with so much conflicting information about the risks and benefits to children of enabling their access to information and entertainment. How do parents equip them to filter what they see? Through censorship or education and guidance?

Granddad being pushed around by the youngest grandson James

I watch my daughters having to make decisions on these topics, with, from what I can read, very little good quality balanced content to help them.

Not much beats some real play time

Family relationships are rarely easy to navigate smoothly, ours being no exception, but I can only thank the much smarter than me Mrs A for her support and positive modelling as to how I can be a better father, grandparent and uncle. Always in her debt it seems!

12-15 September: Three old mates on bikes

Author: Mr A

Location: The Ridgeway – from Goring…heading west, Oxfordshire

Friendship – where would Homo Sapiens have been without it? There’s an argument to be made that the ability to form friendships is one of the most critical skills that has enabled the development of our species. Being able to co-operate across large groups has been fundamental to so much of what humans have achieved, and learning who you can trust and who will not let you down, is at the core of pretty much every big achievement. Humans didn’t build the pyramids, reach the moon, or invent Vegemite (Marmite?!) on their own. Friendships enabled groups of people who didn’t start off knowing each other to work together for a common goal without dissolving into a chaotic mob.

Making and keeping friendships has been central to my life. As an only child with two busy parents, I learnt at an early age I would need to find people who I liked to spend time with. At twelve years of age I made some friends at school who, over half a century later, are people who I love to hang out with, or in the case of this last weekend…ride a bike with.

Meet Andrew and John…

We gathered at one of their houses deep in the Hampshire countryside, embodying all that is good about rural England. Rolling hills, quiet byways, and pubs with great beer!

Our host Andrew had done a great job of organising our ride, trying out the route, getting his car to the end of the route so we could just do a one way trip, and most importantly, identify where the best spots were for a spot of lunching.

Andrew certainly found a great lunch spot

We were so fortunate with the weather, a crisp autumnal morning with blue skies greeted us. We set off in high spirits climbing up onto one of England’s famous old roads, The Ridgeway. It runs for over 140km though some surprisingly remote country in the heart of England.

Well our ride started a little slower than planned with some on trail mechanics being needed for some recalcitrant gears. I provided distant moral support, given my inability to wield a spanner without causing more damage than I solved.

Chief photographer at work

We needed to make up time, and cracked on across some spectacular scenery with nearly 360 degree views across the downs. A tea break was called for, in the time honoured fashion of English country gentlemen out on a jaunt. I had packed a little surprise (well quite a large one actually) to keep the wolf from the door.

Tea and chocolate…all is right with the world (thank you Jenny!)

We finally dropped down off The Ridgeway into a small village, where of course, there was a pub, and lunch was served. And then the old maxim of what goes down….must go back up…hit my two riding companions hard. They were on manual bikes, I did feel for them, it would have had to have hurt.

Beer and crisps!

The best thing about the ride, other than the beer, was the chatting to each other as we rode, often interspersed with some animated verbal sparring, in what passes for affection amongst Englishmen of a certain vintage.

Anyone resenting the ebiker at this point?

We made it to our planned end point having covered 40 miles (65km) of track that was fairly rough in places, so quite smugly hit the pub in the evening. It was a weary trio, well two of us especially so, and you wouldn’t have called it a rollicking night. Age showing its signs?

The next day was another big blue skies cracker, but due to some family commitments we only rode for half a day, again through some stunning countryside. Despite the late kick off we still managed to fit in two pub visits, so yes this was a pub crawl interspersed with some riding, the cynics would say.

Fabulous English countryside at its very best

We all left on Sunday all the richer for the memories of the time spent together. Friendships need nurturing, and digital time only goes so far. I feel privileged to have these people in my life, and all the other friends we have.

I lost a friend last year to depression, and I just didn’t understand it. Despite all the friends he had, that wasn’t enough to make life worth living. For me friendships are what gives life so much of its purpose. To see the smile of a shared joke, that’s really only funny because of the years you’ve had together. To feel the support when you’re in a tight spot, or the gratitude when you can return a favour. This is what makes us human.

Laughter really is the best medicine

Nourish your friendships, they are the family you chose…