Category: London

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1-5 November: More farewells and another lockdown commences

Author: Mrs A

Location: Portsmouth, Hampshire, Honiton, Devon and London, UK

We left Brighton and made our way along the coast to Portsmouth, arriving in time to tune in our little TV and listen to Boris’s Saturday afternoon address of the nation. Except the 4pm address was delayed to 5pm….then the 5pm to 6pm….and the 6pm to…who knows when, because by then we were sipping our first gin and tonics with my sister Elle and brother in law John! They prepared a delicious spaghetti bolognaise and which we enjoyed with the usual sprinkling of funny stories, laughter and some rather delicious red wine.

After dinner we heard confirmation of the announcement – the UK is to go into a countrywide ‘circuit-breaker’ lockdown as of Thursday the 5th November. All non-essential shops are to close, and foreign travel is banned. Thankfully the Australian Embassy in London countered that to confirm that the repatriation flight we’re on is still going to leave on Saturday, and that we are exempt from that rule.

Catherine, nearly one Iris and Elle
Auntie Catherine with William and Edward

All too soon it was Sunday morning and we said farewell, pointing Truffy’s nose westwards to a campsite just outside Honiton in Devon.

It was our final chance to use the services, clean out the toilet thoroughly and basically get Truffy ready for storage.

On Monday we were welcomed to our friends’ Karen and Dan house, where we tackled the final washing requirements and they were very conveniently having a new part of their loft boarded…just in time for us to avail ourselves of a small portion of space for Truffy’s soft furnishings and a few bits and pieces we aren’t taking back to Australia. We are so grateful to these generous friends for their welcome help – conveniently located just 15 minutes drive from where we are storing our motorhome.

I join Karen for a stroll with a dog she occasionally walks…or should I say occasionally walks her!

Over the next three days, we prepared Truffy for winter – draining out the tanks, blowing out all the water from the pipes, and after our last storage experience, setting up some mouse bait stations in the hope we can save some of our wiring from nibbling teeth!

Finally it was time to store Truffy. We awoke to a crisp, clear morning and a fabulous view over the frosty white rooftops of Honiton and to the fields beyond. The perfect farewell memory for this stunning part of the UK. The autumn trees were positively glowing as we drove along empty roads to the storage place and parked Truffy up for the last time.

A frosty Thursday morning
Love these autumn colours…
Everything is sparkling

We both felt rather sad driving away. Although this year didn’t bring us the travel adventures we initially expected, we have had some incredible times these past few months, reconnecting with our homeland, watching the seasons change and relishing all the weathers and temperatures that come hand in hand with them.

While we don’t know when we will be able to return we do at least feel comfortable that Truffy’s in safe hands and will hopefully not be in too bad a shape when we eventually return.

Stepping onto an empty train platform at Honiton, followed by a nearly empty train to London, we were reminded that these are strange times, with more to come. This is the first day of the UK’s second Covid-19 lockdown.

Honiton Station is rather lonely
The carriage is quiet too – not many folks travelling up to London with government orders not to travel without good reason
And we’re all alone at Waterloo Station

Our first step along the way to getting back to Australia was to get a Covid-19 test done. This was included in the price of our ticket with the results being sent simultaneously back to us as well as Qantas sometime in the next 48 hours. Getting a negative result means we can board the plane on Saturday morning…hopefully sooner than that given our flight leaves in a little more than 36 hours’ time!

We caught a taxi to Fenchurch Street where the testing centre was located. It was all very casual and ramshackle, nothing like the NHS centre I had attended for a test two weeks ago. We were called in to be tested one by one, sat in a chair in a tiny cupboard-like office, beside a bin overflowing with cardboard boxes and used tissues. Definitely not the most hygienic testing facility – we both left feeling slightly violated and with the distinct impression we had been placed in more danger of being exposed to the virus than we have in any of our previous weeks of travel.

The Covid-19 testing centre and my test kit

We left and caught a very quiet tube train from the city to Paddington Station where we checked into the Hilton Hotel for the next couple of nights. Thanks to the lockdown, there is no eating out at a restaurant tonight – just an UberEats delivery in our room.

We have one final day left in the UK before we fly, and with few shops open and nothing left to do or prepare, there’s a lovely sense of freedom about the day ahead. A chance to just breathe and enjoy London for its outdoor spaces and cool temperatures before our upcoming time in Darwin’s 34°C quarantine.

The Circle Line at 4pm is usually standing room only…not today
Even Paddington Bear sports a face mask in the Hilton Hotel lobby
Where are all the people? Certainly not at this hotel!
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19-24 October: Feeling autumnal in the south-east of England

Author: Mrs A

Location: Little Gaddesden, Hertfordshire, Hastings, East Sussex and London.

After a lovely morning out with Hayley and the boys, we said goodbye to them and drove a short way south to my cousin’s house in the village of Little Gaddesden. It’s getting to the point now that we are constantly saying goodbye, not knowing whether we will be stopped from seeing family because of Australia’s restrictions on people leaving the country, or by local lockdowns. It is heart wrenching either way.

A lovely relaxed evening with Karen and Iain ensued, a delicious Sunday roast and some fine wine consumed. Monday morning dawned bright and sunny, so Karen, Mark and I set off on a walk (map of our route).

Setting off along a lane

Little Gaddesden is surrounded by the beautiful countryside of the Chiltern Hills Area of Outstanding Natural Beauty (AONB), most notably the Ashridge Estate, the location of Ashridge House, a magnificent mansion built in the 1800s on the site of an old priory built in the 1300s.

We followed a Roman road (known locally as ‘spooky lane’ with several reports of ghosts and witchcraft links) which was sunk by the third Earl of Bridgewater some time in the 1600s to allow his wife to travel in a carriage down the road hidden from the peasants. The green brick walls covered by winding tree roots and ivy certainly looked mysterious.

The Devil’s Bridge

Footpaths wind their way through the countryside in every direction, the vibrant colours of autumn catching our eyes. We walked across fields and down lanes, our ramble finding it’s half way point conveniently at a gastro pub in the lovely old village of Frithsden.

The Alford Arms was doing a roaring trade on this Monday lunchtime
Karen and Catherine – more than four decades of friendship

After a delicious lunch, we looped back around via a restored ancient woodland and the Ashridge Estate, spotting a couple of shy does in the bushes near Karen’s house. They were members of a large herd of fallow deer living wild around here, descendants of deer originally introduced during the 13th century for hunting and venison.

The intrepid walkers
Cousins – still the same two little girls who used to play together on family occasions growing up
Looking out towards Ashridge, hidden behind the trees
Beautifully disguised in the woodland copse, this pair of does certainly spotted us long before we spied them

Tuesday morning saw us once again saying our farewells as we pointed Truffy’s nose further south to East Sussex to spend some time with my mum.

We had a relaxing few days there, making the most of a sunny afternoon for a stroll around St Leonards.

Mr A enjoying the sunshine in a sheltered nook, where my grandparents used to picnic too. He had just had his eye pressures checked and all is healthy – great news!
A picnic lunch on the seafront
Ladybirds were out in force on this sunny afternoon
St Leonards Gardens, originally part of a farm in the 1700s
Mum and Barry have a rest and enjoy the view
The sunlight in the leaves lights up the park
North Lodge Pay Gate was built in the early 1800s ,when St Leonards on Sea was being developed around a burgeoning tourism industry

On Friday morning Mark and I caught a train up to London. Mark went off to have a look around the outdoor shops while I caught a tube across to Hammersmith to have some more injections in my neck, always a joy!

London was eerily quiet, being in Tier 2 of the alert levels (high), many people were staying away from the public transport and working from home.

One minute until the next train and I am the only person on the platform

Charing Cross Hospital (not anywhere near Charing Cross Station, interestingly enough!) also had few people around as I found my way to the ENT outpatient clinic, had my temperature checked (35.8°C) and waited for the team to be ready to see me. The procedure went as planned, with some great news – there is no sign at all of any scarring in my trachea – I am 100% open! That’s the first time that has happened since 2016.

Charing Cross Hospital in Hammersmith sits alongside a quiet haven in London, the Margravine Cemetery a peaceful green space
The fearless grey squirrels rule the roost in the cemetery
Pretending to be a tree trunk

It was hard to celebrate however, as my vocal cord was temporarily frozen by the local anaesthetic and I had no voice, but I made my way back across London to reunite with Mark and head back to Hastings.

Fish and chips from the local chippy concluded our time in Hastings, and after lunch the next day (voice back working, to Mark’s chagrin!), we farewelled mum for a few days and travelled a short way across country to Brighton… It is the start of an exciting week – my sister’s getting married (Covid-19 style!).

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18-24 August: Stormy in Devon

Author: Mrs A

Location: Headon Farm, Holsworthy, Devon

When bad weather is given a name, you know it’s not going to be a fleeting visit, and this has been the case with Storm Ellen. Ellen is a combination of two storms – a tropical storm that originated off the east coast of the USA which met up with another storm coming from Greenland. Is this just weather or the impact of climate change? Nevertheless, the resultant high winds and rain have been what we have been ‘enjoying’ here the past week.

We moved inland from Bude to a farm near Holsworthy, a small market town just across the border into Devon. It is very rural, with few major roads, predominantly a network of tiny narrow lanes, winding around and over the rolling hills, joining up little villages and farms. It makes for ideal walking and cycling territory, and with a break in the rain we went for an explore.

The wildflowers in the hedgerows appreciate the return of the sunshine after the torrential rain
A typical single lane road, looking more like a footpath than something cars drive on
Past historic farms…
The wild skies contrasting with the lush grass

Holsworthy holds a small market on Wednesdays and Saturdays, so we drove in to check it out. It really was small, but we found a lady selling a whole stall of vegan cakes. Being dairy-free, this was very exciting for me (I rarely can consume cake!), and we selected a chocolate orange cake which was divine, and ideal for an afternoon of sheltering from the rain with a cup of tea.

Like Tavistock, Holsworthy has a small Pannier Market with little shops and a great cheesemonger

Mark did a little research and found a vineyard about an hour’s cycle away which offered tours and tasting. The wine industry in the UK is growing rapidly and some of the more established vineyards are achieving a great reputation, though to date, British wine accounts for only 1% of consumption here. Its another sign of the changing climate, with the South of France often reaching summer temperatures in the mid to late 30s, and parts of the UK now much more similar to temperatures of France of the past.

We didn’t get very far, with a thorn wedging itself into my rear bike tire, and after 5km I was off my bike and pushing it back to camp. Perhaps it was for the best. Once back, the weather changed , with blustery showers accompanied by strong gusts of wind. We rebooked the wine tasting for next weekend, when hopefully the weather will be more favourable.

Feeling deflated on the way to taste wine

Friday morning we drove off to Exeter, about an hour’s journey south-east. My breathing had been doing really well, but slowly starting to decline, so I had an appointment to have some steroid injections at Charing Cross Hospital in London. I farewelled Mark, donned my face covering and settled onto the train to Paddington.

All went well at the hospital, with a successful procedure and my trachea looking really good apparently, and soon I was off to stay the night with friends in Twickenham. I first met Jacky face to face back in 2017, but we had been friends for a couple of years before that, having met online through the support group I run for patients with idiopathic subglottic stenosis. She and her husband Austin were amazing hosts, taking me out in Twickenham to an Italian restaurant, followed by a stroll along the River Thames.

Before I caught the train back to Exeter, we enjoyed a Saturday morning explore along the riverside, opening my eyes to a new side of Twickenham, which I previously only knew for hosting rugby matches. Lovely parks, historic houses, art galleries, barges and birds on the river, it was really interesting and very unexpected.

York House Gardens with their amazing statues
Orleans House with its octagonal room, the riverside and a lovely looking pub, The White Swan

We’ve been in the UK for six months now, and in all that time had not managed to go for a pub Sunday lunch. Linda, one of the owners of the campsite we’re staying on (Headon Farm), had recommended lunch at The Black River Inn in the village of Black Torrington, so we booked ourselves in.

It was a 40 minute cycle across country to Black Torrington, following some of Route 3, a cycle network along quiet lanes and cycle paths between Land’s End and Bristol. We were grateful for our motors on the rolling hills, particularly on the way home.

Remembering to appreciate to fresher temperatures that we craved in Australia
Absolutely delicious food – a shared platter of roasted meat and vegetables
An entree of Cornish mussels for Mr A and Cornish Mackerel for Mrs A

A brilliant dining experience, well deserved of their great reputation. They even served Wicked Wolf ale, the beer sold by our old neighbour in West Bagborough.

The coming week is going to take on a different pace, with my sister Helen coming camping with her family, and friends from Honiton also joining us for a couple of nights. We’re really looking forward to it – whatever the weather, we’ll brave it together!

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14-17 March: Being world travellers in a Covid-19 world

Author: Mrs A

Location: London and Little Gaddesden, UK

Life is becoming quite surreal, yes more so than usual! As the coronavirus takes hold globally and ever increasing measures are put in place to help protect health systems and patients, our travel life is certainly not going as we expected.

Mr A and I went our separate ways on Sunday, him heading up to Doncaster to get a new levelling system fitted on Truffy (means we can travel with a washing machine instead of giant ramps, and getting us level each night will be much easier). I meanwhile headed south to stay with my cousin and her family in Little Gaddesden in Hertfordshire.

Bumping elbows instead of hugging, administering hand sanitiser at every opportunity and washing hands for a good 20 seconds, we are doing as much as we can, but one is all too aware of the invisible enemy out there. Every cough is quickly smothered with an excuse, a lack of fever or breathlessness appreciated. I had an element of anxiety that I might be introducing our invisible enemy into the healthy household, despite not having knowingly been in contact with anyone with Covid-19. They too had the same fears with my cousin’s daughter Ella still going to school.

My reason for heading south was a doctor’s appointment in London. I’d had some unusual blood test results earlier this year, so was off to see a specialist at the Royal Free Hospital in Hampstead. Until the morning, I was neither sure whether the appointment was still happening, nor whether my mum would still take the train up from Hastings to meet me there.

It turns out, both happened. With unfamiliar trepidation I caught a train down to London, careful to disinfect everything I came into contact with – the touch-screen ticket machine, the arm of the seat I sat in. There was hardly another person on the train.

An almost deserted platform at Berkhamstead station

Mum and I met at Hampstead tube. It felt very strange only to do a very brief and careful hug after not seeing each other since November, but with both of us in high risk categories (mum over 70 and me with an airway disease) we were being ultra cautious. Mum spent the first 20 or so years of her life in the Hampstead/Gospel Oak area, so this was a real trip down memory lane for her.

A catch up over a drink at a local pub
Coffee for mum, soda water for me and lots of hand washing!
Lovely spring colours belying the cautious overtones

It was a beautiful spring day, blue skies and a gentle breeze, the air clear and the streets not crowded. We strolled up as far as Hampstead Heath and enjoyed the views over the city, life going on with new leaf buds fit to burst, daffodils bobbing in the breeze and blackbirds singing in the trees. You cant help but wonder whether mother nature has her own plans for saving the planet by wiping out the cause of so much damage…let’s hope not!

Whitestone Pond – mum recalls skidding across this with her sister when it froze over during winter
Mum remembering her time at Hampstead Heath
Flowers frame our view of central London

We enjoyed delicious vegan lunch in a bright little cafe then it was down to the hospital.

Delicious food at Ginger and White cafe
Royal Free Hospital, Hampstead

An hour later and we were off, catching the number 24 bus to Camden Road, the same route mum used to take to work when she lived in London, BC (before Catherine!).

It is expected that soon over 70s will be asked to completely avoid any social contact. This may well be the last time I see mum in person for weeks, or even months, but it is worth it to keep her well and safe. We farewelled and headed home on nearly empty trains, repeating the regular sanitising and social avoidance.

It’s a tough time to be travelling. Watching people in France in a two week lockdown makes us wonder what we are in for. Our family is so close, and while we would love to spend time with them, it looks like we might have to keep our distance. Our plans remain forever fluid as we adjust them by the moment, hoping that one day this will be just another experience we lived through and survived.

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9-13 March: Our fluid plans start flowing

Author: Mrs A

Location: London and Harby, Nottinghamshire, UK

Our flight from Vienna left without a hitch and we travelled across London to a hotel near Kings Cross, where we had planned to spend the night. We had just missed a heavy rain shower and everything was shining and glistening as we wheeled our cases along the street.

Just over 8 months of luggage wheeling along the street

After dropping our cases, we went off for an explore, the spring sunshine coming out for the end of the day.

The gothic St Pancras Renaissance Hotel, built in 1873 has been opulently restored. This is not where we stayed!

Seeing this area of London through our post-Vienna eyes we noticed the stark contrasts. The numerous homeless people sat shivering and begging for money along the street were something that was hidden in Austria, but here so visible. The beautiful buildings are still there, but all too often nestled next to 1960s and 70s monstrosities, little apparent thought given to blending the building styles.

We saw a sign pointing towards the Regents Canal, a waterway that has been substantially revitalised in recent years. It was busy with people enjoying Sunday afternoon, strolling home along the towpath with shopping in hand, or stopping at one of the waterside bars for a glass of wine or a pint.

Office buildings and residences alongside the Regents Canal
Sunset as we stroll back to the hotel

It’s definitely an area that is in the midst of being revitalised, with old tower blocks being demolished in favour of interesting open air bars and shopping, eating and entertainment precincts.

Later that evening we met up with London-based friend Jacky for our first British curry, opting to go to north Indian restaurant, Yatri, attracted by its great reviews. It certainly deserved its good reputation, with delicious food and a modern cosy atmosphere.

Fellow iSGS patient, Jacky

On Monday morning we took the train up to Nottinghamshire, jumping off at Bingham Station, where we were met by one of the Fuller’s Leisure team and escorted to Truffy, our motorhome.

Habitation experts Nathan and Dave from the Fuller’s workshop did an excellent job as always…’Fuller’s Leisure, always a pleasure’

They had been working on a few warranty issues and upgrades while we were back in Australia, and after a tour around all the new amendments and features, we drove off up to our friends’ house, just south of Lincoln.

We’ve enjoyed a lovely week with our friends John and Catriona, who so generously have opened their home and driveway to us to allow us to get ourselves sorted. We even have our own wing to the house – it’s going to be hard to leave!

A 14km (9 mile) walk on Thursday from our friends’ home along a rail trail took us straight into Lincoln, a historical university city with a castle and cathedral. We relished the sunny day, wrapped up against the chilly wind that seems to come straight from Siberia!

Mr A all wrapped up
Being a rail trail the path is very level and avoids the muddy pathways
Hazelnut catkins and new leaf buds show signs of spring
The fields look descriptively dry with their crispy wheat stems – this area flooded over the winter months and there were quite a few puddles remaining
Lovely colours
Flowering blackthorn bushes line the path

While in Lincoln we caught up with my cousin’s daughter, Hannah, and treated her to dinner. We can still remember our student days, appreciating any signs of civilisation and it was good to hear how she was doing six months into her course.

Kanpai ! We introduce Hannah to her first taste of Japanese Sake

Where to from here?

Our plans were originally to head off to Spain on a ferry two weeks tomorrow. But now with the rapidly spreading Covid-19 virus and estimates that around 70% of the population will catch it, being stuck with an underprepared medical system in Spain is not too attractive. Add in the complexities with my airway disease, and you could end up with a potentially life threatening situation (there are no specialists in iSGS in either Spain or Portugal). As borders are starting to be closed off, this seems like an unnecessary risk to take.

So instead, we are planning to practice our relative social isolation by travelling around the UK. At the moment we are thinking that Devon and Cornwall might be attractive options, as well as Wales. Our next couple of weeks will be with family and friends, inter dispersed with some medical visits, and hopefully remaining healthy. We are pretty good at changing our plans on the fly, so will play things by ear over the coming weeks and months…we’ll keep you posted!

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24-31 October: Winter is coming…preparing Truffy for storage and our last days in UK

Author: Mr & Mrs A

Location: Newark & Harby, Nottinghamshire, Milton Keynes, Buckinghamshire, London and Hastings, East Sussex, UK

Our final week in the UK for a while went quickly, the autumn temperatures dropping and the wet weather continuing. We are so fortunate to have good friends John and Catriona living not far from where we are storing Truffy, with a nice flat driveway on which we spent a good day avoiding the showers and getting him prepared to store.

The Hymer Owner’s Group was again invaluable in its help providing an essential checklist on all the many things we needed to do to ensure our little camper would make it through a British winter unscathed, and we set about draining tanks, blowing water out of pipes, cleaning and removing soft furnishings. We are so grateful for our friends’ large attic space where we have stored anything that might freeze or suffer from damp.

We made sure we were finished by the weekend when friends Stuart, Karen, Barny and Mel arrived for a farewell/reunion, revisiting our memories of our last time together back in June in La Marche, Italy. It was a fun weekend with a few gins sampled from around the country – with contributions from as far apart as the Outer Hebrides, Cornwall and Hastings.

A magnificent feast with dinner from Catriona and dessert from Karen on Friday night
After a day of pouring rain, Saturday night cleared to a fabulous sunset
Feeling cheery after a rainy Saturday afternoon chatting and drinking champagne, as you do
Stuart enjoying his glass of red
A little brotherly love between John and Barny

While the others enjoyed the Wales-South Africa rugby match on Sunday morning, we jumped on our bikes for a final ride, enjoying the emergence of bright sunshine but braving the chilly temperatures to ride 15km along a rail trail from the village of Harby to the River Trent. Apparently funding has been secured by a community group to extend this path all the way to Nottingham – we look forward to doing that once it is completed.

Mr A heads off down the path
  • Mr A at our end point looking across the flat landscape
  • The River Trent very swollen after a few days of solid rain
Our start and end point where Doddington and Harby station once stood

Sunday afternoon saw us heading out for a stroll around Whisby Nature Park, an old quarry which has been transformed into a wetland environment with walks and bird hides.

Once barren sand and gravel pits, this area has been restored to provide bird, insect and other wildlife habitat
  • Mel and Barny stroll down one of the many pathways winding through the park
  • The rain has brought out lots of mushrooms and toadstools
  • Fungi standing out like sculptures in the woodland
Silver birch trees are common here. These native trees were first to colonise the UK after the last ice age and are quick to grow and stabilise an area.

Our short walk blew out the cobwebs before we all farewelled each other until next year.

On Monday it was time to drive to Hawton Waters to store Truffy. We left him locked up safe and sound and went off on our way. From here we hired a car and drove south to Milton Keynes.

Truffy’s new home for the next few months

Mr A: While Mrs A was off to London then Hastings I had a few magic days with my daughters in Milton Keynes. I would count as the highlight of our trip this year the opportunity to spend time with them, and their children. two of my grandkids were away with this time, but the two who were around were plenty to handle!

Luke getting more confident riding his bike around the quiet neighbourhood streets

I am just amazed when I watch mums of young children just power through the endless challenges of parenting, especially when it’s school holidays as it was this week.

We had a couple of outings, a walk along the River Ouse was declared “enjoyable” by my older grandson, quite an accolade really considering mum had to prise him away from his Minecraft game!

Strolling along the River Ouse
Luke lapping up some grandfatherly wisdom – James less interested

That night I took my two daughters out for a meal, and what an absolute pleasure that was. Turkish and Lebanese fine dining, in the best company.

My favourite daughters, Zoe and Hayley…

Wednesday was a trip out to an open farm, the coldest place I have ever stood in. I have gone so soft in the Australian sun. The boys loved it though, interacting with the animals and playing on the farm toys.

Off to the farm
  • James gets up close and personal with a white cockatiel
  • Sticking with the white theme, Luke meets a rabbit
  • Beep! Sheep on the track?
  • ‘Call that a tractor?’

Mrs A: Mr A dropped me at Milton Keynes Station and I took the train into London. There I spent a lovely evening in Twickenham staying at a friend’s house. Jacky is another of the wonderful women I’ve met through my rare disease – making special friends is certainly one of the unexpected benefits of running the support group.

Tuesday morning saw me back at Charing Cross Hospital for my next airway examination and set of steroid injections. I was fairly anxious about this appointment given my breathing had declined over the past month, and I was worried the scarring was quickly returning. It was with some relief I was told I just have an infection and the scar has remained at bay.

After my appointment I travelled over to Charing Cross Station (nowhere near the hospital of the same name) and met my mum at Trafalgar Square. We spent a great afternoon visiting the Royal Acadamy of Arts for an exhibition of Lucian Freud’s self portraits followed by a browse around the Covent Garden Market stalls.

Catherine and Jenny
Gold leaf decorated gates on the entrance to the Acadamy
Mum grew up in London but this is her first visit to the Royal Academy of Arts
There are two major exhibitions on right now – sculptures by Gormley and self portraits of Freud
  • An early Freud work
  • And a much older Freud, shortly before his death
  • A cup of tea in the cafe afterwards
  • Recovered from my hospital procedure now!
Covent Garden is all prepared for Christmas with giant baubles and mistletoe adorning the marketplace
Can you spot us in the bauble?

We concluded our London day out with a pre-dinner drink at the Fortnum and Mason Wine Bar, followed by dinner at Viet Food in Chinatown.

Fortnum and Mason was founded in 1707, and remains a glamorous and glitzy department store. It‘s worth visiting for the luxurious hand cream in the bathrooms alone!

Mum remembers taking cooking classes in the 1960s with a pastry chef from Fortnum and Mason, but cannot recall ever having visited the store…another first!
The wine bar is in the basement and sells a range of premium drops from around the world. Mum chose an Australian Barossa Shiraz….
An Italian Montepulciano for me…
Another first for mum – Vietnamese food in Chinatown
Some delicious dishes enjoyed…
A busy and bustling Chinatown on this fresh October Tuesday evening…London never sleeps

It was a fun mother-daughter catch up and chance to treat mum for her birthday which I missed in September.

Wednesday was an opportunity to spend some time with my 97 year old grandmother. She has been unwell recently and spent some time in hospital with pneumonia and cellulitis, and hearing she was back on antibiotics I made it a priority to get in and see her. It’s one of the challenges of travelling, especially when you’re on the other side of the world, wondering whether it will be the last time you see someone you love. She was in great spirits, rosy cheeks from her infection, but still full of smiles and laughter and could still remember ‘Catherine visiting all the way from Orstralia!’.

Grandma getting the hang of ‘selfies’
Three generations of smiles

Thursday: So now its time to head back to Australia, heads crammed with memories of so many wonderful experiences. Time with friends and family, as well as learning about so many new places. Our dream to travel in Europe, converted to memories of 8 different countries.

People travel for pleasure for lots of different reasons. For us it‘s the opportunity to make new friends, deepen the existing relationships we have, explore new countries and try to understand a little of their culture and history. It’s been simply amazing. To get to share this with adventure with someone as smart, funny, positive and gorgeous as my wife/husband – truly awesome.

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13-15 September: Royal palaces and sunshine

Author: Mrs A

Location: Brighton and London, UK

Sunshine is never guaranteed in the UK, particularly during September, but we were very fortunate to get a glorious weekend served up. Despite having a bad reputation, Friday the 13th dawned bright and sunny and mum and I left Hastings and drove over to my sister’s home in Brighton.

After a little shopping, mum and I met Helen and niece Isabel for lunch in a local pizza restaurant, Fatto A Mano. Named as one of The Guardian’s top independent pizza restaurants in 2015, they are well known in Brighton and Hove for their light pizza bases and delicious toppings. They even had three choices of vegan pizza meaning I could join in with a flavoursome meal!

Where has Miss Isabel learned to pose?
Three generations of ladies who lunch
Scooting and strolling through North Laine
Mum and I head home via the Brighton Pavillion

We had a lovely afternoon around the shops in Brighton and North Laine, after which mum drove back to Hastings.

Saturday morning, Helen and I said goodbye to Stu and the kids and went up to Brighton Station to catch a train to London for a sister escape. Helen and Stu both work so hard with their children and work life, and H really deserved a break. For me, selfishly perhaps, I adore my sister’s company and over the past two decades have not enjoyed it enough, and so wanted just one night for the two of us to chat, enjoy and just be together.

Our intention was to whizz up to London, leave our luggage at our hotel and explore. Unfortunately the trains had other ideas, and what should have been an hour journey took around three hours and three trains! It seems Friday the 13th’s reputation has transferred to Saturday the 14th.

Finally we did make it to our hotel near Earl’s Court, and St James’s Park was our next destination. We have memories of visiting this area as children on day trips with our mum, feeding the sparrows with pots of seed bought from little old men, now long gone. The weather was spectacular, and perfect for walking through the gardens.

Happy just to be together
Beautiful gardens

St James’s Park is the oldest of the royal parks and is surrounded by three palaces – Buckingham Palace is the most famous, St James’s Palace, built for Henry the 8th in 1532, and the Palace of Westminster (dating back to the 11th century) – better known these days as the Houses of Parliament (which has been held there since the 1300s).

Looking towards Westminster with Churchill’s underground war rooms on the right hand side

Horse Guard’s Parade remains part of the park, created during the 18th century, and too are the golden ornate gateways dedicated to the dominions – Australia, South Africa and Canada.

The left Australia gate post has a cherub with a sheep
The other Australia gatepost has a kangaroo with the cherub
Outside Buckingham Palace is the Queen Victoria Memorial, which celebrates the days of the British Empire. The memorial includes the marble statue of Victoria and the glittering figures of Victory, Courage and Constancy.
Buckingham Palace – the Royal Standard flag is raised meaning the Queen is home (if she’s away it would be the Union Jack). Helen came here to the annual garden party a few years ago, invited as part of the charity she worked for at the time. We didn’t get an invite this afternoon though.
The Royal Standard used in England, Northern Ireland, Wales, and in overseas territories
Cheesy sister photo in front of the palace

From here, we crossed into the cool shadiness of Green Park and made our way over to the Canada Memorial for a sit down, watching as wood pigeons flew down for a drink.

Green Park
Unveiled in 1994, the Canada Memorial recognises the one million Canadians who fought alongside the British during the two world wars. It’s a lovely peaceful spot to sit and relax a moment in the shade, the water gently rippling over the granite and across brass maple leaves.

After all this exploring we went back to the hotel for showers and to get ready for our night out.

We had an early dinner at a delicious Thai restaurant near Earl’s Court Station (Siam Secret – definitely recommend for authentic Thai food) before catching the train to Piccadilly Circus and the Princes Theatre for our evening’s entertainment – The Book of Mormon. This show is one of the most successful musicals of all time, and the 14th longest running show on Broadway (as of July this year).

Outside the theatre
In the bar, waiting to go to our seats
Brilliant seats with a fabulous view of the stage
Enjoying our night out already

We really enjoyed the show, packed full of laughter. Maybe don’t go along if you’re sensitive to the odd swear word, a Mormon or not open to thinking slightly differently about religion (apparently 10-15 people walk out of the show each night)) but for entertainment value it was fabulous.

We exited the show on an absolute high, wishing the show could have continued for another hour, and strolled around to Leicester Square, Chinatown and Covent Garden, just people watching and lapping up the atmosphere of a Saturday night in London.

Who knew there was a whole shop dedicated to M&Ms? Helen persuaded me to go in and I had to do some shopping
Strolling through Chinatown, enjoying the buzz
The streets that never sleep

Sunday: Our night in the hotel included breakfast, so we feasted to get our money’s worth before rolling out of the door on Sunday morning for a stroll. We had no plan as to where to go, but explored the streets of Earls Court and Kensington, deciding it would be an area that would suit us quite nicely, if anyone out there would be willing to donate us a house or apartment!

We wound our way through the streets to Kensington Palace, which has been in the royal family since the 17th century. Presently it is the residence of the Duke and Duchess of Cambridge (Prince William and Catherine) among others, but like the Queen, they didn’t invite us in.

The royal apartments are in the background behind Helen’s head
24 May 2019 was the celebration of 200 years since the birth of Queen Victoria – she spent her formative years at Kensington Palace
Wandering around Kensington Palace gardens, free to the public
Beautiful formal gardens, being prepared for the next plantings
Views across the gardens to the Round Pond
Many swans on the Round Pond

We enjoyed strolling through Kensington Gardens and through into Hyde Park, finding ice creams on our way through. We stopped at the Princess Diana memorial fountain, a circular water feature made from Cornish granite, full of children playing and visitors cooling their feet. We of course had to join in.

Refreshing for the toes
A fine way to spend half an hour – I think Princess Diana would be very pleased!
The Serpentine Bridge, built in 1730, marks the boundary between Hyde Park and Kensington Gardens
Crossing the Serpentine Bridge
The boating lake is popular on this warm Sunday afternoon

As our afternoon led to a close we were sad to head back to the hotel and collect our luggage, and make our way in separate directions home.

Helen attempted to take time-travel back home, but sadly the door was locked
(If you don’t understand, Google ‘Dr Who?’ & ‘Tardis’)

It was a fantastic weekend – so special spending time with my mum and sister, every moment and memory treasured. Helen headed back to Brighton, while I travelled north to meet up with Mark and his daughters in Milton Keynes.

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6-9 September: A busy birthday weekend in Brighton and London

Author: Mrs A

Location: Brighton, East Sussex, and London, UK

Friday: We farewelled mainland Europe and after a four hour cruise from Dieppe to Newhaven were soon pulling up at the campground in Brighton, now very familiar being our third visit in Truffy.

Boarding the ferry at Dieppe

My sister Helen soon arrived with our niece and nephew for a visit, and presents were exchanged – a birthday gift for Elliot and a little something from Slovenia for Isabel. Our next stop was one of the many fish and chip shops along Brighton seafront, where a feast was purchased and taken to the Hilton Hotel. There we joined Mark’s daughter Hayley and her children Luke and James who’d travelled down to join us for the weekend. We munched on our goodies before helping put the kids to bed for the night.

Mr A excited to see Hayley as well as the ‘proper’ chip shop menu! ‘Mmm, curry sauce, pickled eggs, pickled gherkin, mushy peas….’
Sun’s going down on Friday
View from Hayley’s room
Brighton Pier looking vibrant on our walk back to camp

Mark and I strolled the 4km back to camp along the seafront, welcoming the chance to walk off the fish and chips and stretch our legs after a big day of travelling. We’ve gone back an hour on our journey across the English Channel too, and are feeling the jet lag!

Saturday morning we were off back to catch up with the family in Brighton.

Granddad Mark entertaining the boys

Mark joined Hayley, Luke and James on an open top bus tour, then I met them at Brighton Pier, soon to be joined by Helen, her fiancé Stu, and their kids. Officially I think we worked out these are step-second-cousins, but we decided to just call them cousins. They all got along just fine given it’s their first visit. We hope it isn’t the last.

Mr 8 is joined by Miss 5, Mr 7 and Mr 3 on the kids’ table
The English Channel looks almost tempting when the sun comes out

We had a lovely morning with them, and in the afternoon Mr A and I both had hair cuts to make ourselves more presentable!

Both a little more trimmed and tidy!

All this family action has not only been to welcome us back to old Blighty, but also to help celebrate Mr A’s birthday. We concluded our Saturday with a celebratory delicious curry and some fine wine with Helen and Stu.

Celebrating Mr A entering his 64th year (Helen had run out of number 3s!)

Sunday morning dawned clear and crisp, and Mr A was soon back on another open top bus with Hayley and the kids doing another tour of Brighton. I joined them later for a spot of lunch on the beach.

A fresh Autumnal morning near the old West Pier
Ice creams on the beach

It was great seeing the boys enjoying their time on the seafront. Having grown up near the beach just along the coast, I was able to share all the games and adventures Helen and I had enjoyed in our childhood, and soon had Luke and James hunting for sea glass amongst the pebbles.

Before long it was time for us all to catch the train up to London. Hayley, James and Luke were heading home to Milton Keynes, while Mr A and I had booked a hotel for the night and were meeting Zoe, Mark’s oldest daughter for a birthday eve dinner in Chinatown. We ate a delicious Vietnamese meal at VietFood, coupled with a bottle of French red. It was great to spend some time with Zoe minus children, lovely as they are.

Bustling streets of soho

It always amazes me how the streets of London are never quiet, even on a Sunday night. Especially around Leicester Square there were street artists, break dancers, buskers and many visitors, all vibrant and exciting. By the time we farewelled Zoe, however, we were exhausted and ready to go back to the hotel and crash.

Monday morning was Mr A’s birthday officially, and we were at the location of his chosen birthday gift bright and early. He’d chosen a Tudor watch – the sister company of Rolex. He’d been wanting a watch since his 60th birthday but it has taken until now to select the right one. The chosen option looks fabulous and makes for a very happy Mr A.

Hard to stop looking at your wrist when there’s something new there!
Happy birthday Mr A!

There followed a little browsing around the shops before meeting up with ‘best man’ Martin for a spot of lunch…

Pie, peas and mash times two please…Martin and Mark slip easily back into their old banter

Mark and I have not had cold weather for around four years, so do not own any suitable clothing for the dropping temperatures. We decided that wearing all our clothes at once was getting a little tiring and that we ought to invest in warmer coats. The streets around Carnaby Street helped us out there.

Get ready to sparkle in Carnaby Street London

After a successful afternoon’s shopping, we travelled back to Brighton, bidding farewell to Helen, Stu and the kids on our way back to Truffy.

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1 – 6 July: Meanwhile, back in the UK…

Author: Mrs A

Location: London and Brighton, UK

Monday: A taxi collected me from Camping Stobreč early Monday morning and escorted me to Split airport, where I boarded a plane to London, Gatwick. Within half an hour of landing at Gatwick I was on a train heading to London. It was all very smooth – having only 8kg of hand luggage helped!

Split airport – not too busy at 8.30am on Monday morning

Yes, you guessed it, the injections I had flown back for at the end of May had not made any substantial impact on my breathing, and I was on my way back for surgery…very disappointing for us both, but sadly a fact of life we have learned to get used to the past 15 years.

I have to admit that after the heat of Croatia, it was positively refreshing to step out of the airport in to temperatures in the low 20s – like the air conditioning we had been craving all weekend!

I caught a train up to West Kensington in London and checked into the Earls Court Holiday Inn Express near the hospital. I was scheduled to be in at 7.15am, and was keen to get a bit of sleep before the operation.

The view from my hotel room – a far cry from the Roman and medieval buildings of my past few weeks, but not too bad at sunset

Tuesday: I woke early and strolled over to the hospital, meeting junior doctors, an ENT registrar and the anaesthetist, getting weighed, blood pressure and temperature tested. Finally I slipped on a gown and a pair of sexy green DVT stockings and headed to theatre for my airway dilatation.

Both consultants I have been seeing, Mr Guri Sandhu and Mr Chad Al Yaghchi came to visit me in recovery, much to the surprise of the nurse who told me not to expect anyone. All had gone well – my airway had closed by about 60-70%, explaining the challenges with breathing I have been having.

We discussed next steps for my treatment, with both doctors agreeing I should give the steroid injections into my airway another try, but with a higher frequency – every 4-6 weeks rather than 8 weekly. This is what my original doctor had told me, but I had defied him, not wanting to disrupt our travel plans too much…this time, however, I agreed to give it a go. It is going to be hard to keep to our travel plans where I keep having to return to doctors for treatment, but I have to breathe…very frustrating!

Mum travelled up from Hastings to break me out

When I was returned to the next stage of recovery, my mum was there waiting for me, a welcome face amongst all the medical fraternity. Together we left the hospital, taking a taxi the five minute drive to the hotel for the night.

Evidence – 2:10pm I broke out of hospital

We had a relaxing afternoon, catching up on news, a Chinese takeaway and an early night.

Wednesday: Mum and I got to enjoy a final breakfast at the hotel, and we joined by a member of the support group I run, Kelly from Cornwall. She and I had been exchanging messages online for about four years, and she is also a patient of Mr Sandhu. It was amazing to hear Kelly’s story which is quite different from mine, but with some similar symptoms. She’s a passionate and enthusiastic lady – hopefully we can work together and perhaps meet again.

After checking out, I then headed to Brighton to finish my convalescence with my sister and her family.

Thursday: One of my friends from university, Claire, lives near to my sister and also had a hospital visit this week. It was good to catch up with her for an hour to hear how she had gone. Soda water and lime was our choice of beverage as we sat in a sunny pub garden.

Two post op friends – Claire on surgery #1 and me #29!!

Later in the day I joined my sister in collecting my niece and nephew from school, and we took them down to the local park for a play in the fountains down there. Much fun for the children…and ice creams for my sister and I (medicinal reasons of course, soothes a sore throat!)

Yay for vegan ice cream!
Elliot working on stopping the flow….What happened next? Yes the water sprayed me straight in the face!
Isabel enjoying the water
And some park time to help warm up after the water

Friday: It was back up to school with the kids to drop them off for their day, before joining my sister in some shopping, picking up bits and pieces we cannot get in Croatia.

That wiped me out for the afternoon, and I was grateful not to be in 33 degrees as I collapsed into bed for a sleep.

We had a quiet evening at home, sharing a takeaway curry and a glass of wine as the sun went down.

Spectacular skies over Brighton this evening

Saturday: Another bright sunny day with temperatures in the low 20s – making me really appreciate British summertime – I wonder why it never is dull and rainy when I visit? Poor Mark is already sweltering in Split, having started his day with the washing and cleaning out the fridge.

I’m pleased to say my breathing is much better, and sore throat aside, I am feeling good.

Chart showing my peak expiratory flow (PEF) – back on track for now

I will be back on a train to the airport this afternoon, then back to Split this evening. Mark and I have decided tomorrow it will be time to move on and explore more of Croatia…it will all be much easier with a full airway!

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30 May – 1 June: Flying visit to London for news about Darth Vader…

Author: Mrs A

Location: Brighton and London UK

Thursday: There was no sleep all night as I awaited my 4.45am alarm to send me off to the airport for my flight to the UK. I farewelled Mr A and taxied to Firenze airport.

Boarding Vueling Airlines flight to London Gatwick

All went without a hitch and my sister Helen met me at Gatwick Airport with my niece and nephew, Elliot and Isabel.

We had a lovely morning taking the kids to a local park, the cloud clearing to a lovely bright sunny day.

Elliot and Isabel being entertained at the park

It was so good to have some time with my sister before Friday’s appointment in London.

Sisters – off to the pub for dinner

Friday: Regular readers will know I have a rare disease, idiopathic subglottic stenosis (iSGS). Sadly there is no known cause or definitive treatment for this disease, which basically results in your airway closing up, filling with scar tissue. The reference to Darth Vader relates to how it sounds when you’re breathing through a narrow airway!

Since December last year, I have been trialling a new procedure which involves injecting steroids into the scar tissue while awake (under a local anaesthetic). It has been working really well, and until about Easter I had no issues with breathing. Unfortunately, since late April I had been starting to struggle more and more, with this visit to see an Otalaryngologist in London the only way to really understand what’s going on. It was a day I was simultaneously looking forward to and dreading, wanting to know more, but fearing I knew the answer already.

I caught the train up to London, and then across to Kew Gardens. There I met with a fellow iSGS patient, Jacky, with whom I have become friends after meeting online via the support group I run on Facebook.

My hospital appointment wasn’t until 3pm so I had a chance to spend some time doing something for me. I have seen many friends visiting Kew Gardens and the Chihuly Glass Sculpture exhibition and was keen to go for myself.

A little bit like my head is feeling!

Beautifully restored Victorian greenhouse

Perfectly popping colour

You can almost imagine these sprouting out of the soil

Like amazing flowers bursting out of the greenery

There be dragons…

Some look better when you step away from the glass and look at the big picture

Wonderful water lilies

Jacky was a great guide, and we explored the incredible sculptures in amazing settings. We spent a couple of hours in the gardens before parting ways.

I headed off to Charing Cross Hospital (nowhere near Charing Cross station, interestingly enough, but nearer Hammersmith) for my otolaryngologist (ENT) appointment.

I didn’t wait long before Mr Chadwan Al Yaghchi (Chad) called my name. Chad is a trusted colleague of Guri Sandhu, the expert consultant who I have been seeing in the UK since 2014 and one of only a few doctors who does the steroid injections under a local anaesthetic rather than a general.

I signed my approval forms and had a laryngothracheoscopy (a camera which passes up through your nose, down your throat, past your vocal cords and into your trachea).

The camera showed the scarring was returning to my airway, and in the area it had built up I was breathing through around 6-7 millimetres (closed by about 50-60% – think about the diameter of a pencil when I should be breathing through at least double that). As you can imagine, any extra mucus will narrow this even further, and constant coughing will cause inflammation which can cause yet further issues. This was very disappointing news, but not that surprising – I already knew it was getting harder to breathe on all these steep hills, I just now had confirmation of why.

Chad continued with the injections, all done through the camera, and within an hour it was all over. Now I begin the waiting game to see how they impact the scarring. I need to nebulise saline (breathe in clouds!) at least twice daily to keep my airway moist and help avoid issues, and am keeping my fingers crossed my peak expiratory flow (how much air I can blow out at speed) improves, and the scar retreats.

The story of my breathing over the past year or so….

The coming week to ten days will be important to determine whether it’s worth flying back in five or six weeks for another injection, or whether I will need to go to more drastic measures and have a dilation operation.

Exhausted after all the news and procedure, I headed back to Brighton for the evening.

Saturday: After a few stressful and full days it was nice just to relax with my sister and her family in Brighton.

Spectacular weather means ice creams and water play

As the day drew to a close, it was time to head back to Gatwick and fly to Florence. It has been a hectic couple of days, made all the more pleasant for being able to spend some precious time with family. 

A fine view of Sussex as the plane takes off

I now know I will be back in London again in July…the question is, will yesterday’s procedure stem the decline in my airway so I can just head back for more injections, or will things continue their downward trajectory and mean I need surgery? Only time will tell…meanwhile I feel even more determined to make the most of our travels.

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