If you are a curious patient or if you treat patients with iSGS and would like to be kept up to date with the latest papers and the most recent version of the Rough Guide, please contact Catherine via: email@example.com
Access to all most recent and relevant papers from member organisations on the topic of iSGS.
iSGS and pregnancy – a new report based on research conducted with the support group I run, looking at patient experiences and attitudes with pregnancy while dealing with idiopathic subglottic stenosis.
The final report from The Vanderbilt Study – Treatment Alternatives in Adult Rare Disease; Assessment of Options in Idiopathic Subglottic Stenosis
And a paper which details the Wedge procedure which performed best in terms of longevity (time between operations) while minimising damage to voice.
For stenosis patients (doctors also welcome!): Living with Idiopathic Subglottic Stenosis Facebook support group
And a paper analysing the effectiveness and content of the support group can be found here: Annals of Otology, Rhinology & Laryngology. 128(4):293–299, APRIL 2019 The Online Support Group as a Community: A Thematic Content Analysis of an Online Support Group for Idiopathic Subglottic Stenosis
Idiopathic Subglottic Stenosis – A Rough Guide for Beginners – (Known as ‘The Rough Guide) – booklet for patients, registrars, students helping explain in simple terms all about iSGS, its treatment options and other tips on coping. Updated May 2021.
A retrospective paper on the endoscopic resection technique: Idiopathic Subglottic Stenosis: An Evolving Therapeutic Algorithm, Laryngoscope, 124:498–503, 2014
Idiopathic Subglottic Stenosis is Associated with Activation of the Inflammatory IL-17A/IL-23 Axis, Laryngoscope, 127:179-185, 2017
Molecular Analysis of Idiopathic Subglottic Stenosis for Mycobacterium Species, Laryngoscope, 127:179-185, 2017
April 2019 – Vocal fold fixation due to proximal stenosis progression complicating idiopathic subglottic stenosis – S. A. R. Nouraei · E. B. Dorman· J. Johnston · D. E. Vokes