Resources for doctors

If you treat patients with iSGS and would like to be kept up to date with the latest papers and the most recent version of the Rough Guide, please contact Catherine via: idiopathic.subglottic.stenosis@gmail.com

North American Airway Collaborative

Access to all most recent and relevant papers from member organisations on the topic of iSGS.

Patient-Centered Outcomes Research Institute

The final report from The Vanderbilt Study – Treatment Alternatives in Adult Rare Disease; Assessment of Options in Idiopathic Subglottic Stenosis

For stenosis patients (doctors also welcome!): Living with Idiopathic Subglottic Stenosis Facebook support group

And a paper analysing the effectiveness and content of the support group can be found here: Annals of Otology, Rhinology & Laryngology. 128(4):293–299, APRIL 2019 The Online Support Group as a Community: A Thematic Content Analysis of an Online Support Group for Idiopathic Subglottic Stenosis

Idiopathic Subglottic Stenosis – A Rough Guide for Beginners – (Known as ‘The Rough Guide) – booklet for patients, registrars, students helping explain in simple terms all about iSGS, its treatment options and other tips on coping. Updated May 2020.

A retrospective paper on the endoscopic resection technique: Idiopathic Subglottic Stenosis: An Evolving Therapeutic Algorithm, Laryngoscope, 124:498–503, 2014

Idiopathic Subglottic Stenosis is Associated with Activation of the Inflammatory IL-17A/IL-23 Axis, Laryngoscope, 127:179-185, 2017

Molecular Analysis of Idiopathic Subglottic Stenosis for Mycobacterium Species, Laryngoscope, 127:179-185, 2017

April 2019 – Vocal fold fixation due to proximal stenosis progression complicating idiopathic subglottic stenosis – S. A. R. Nouraei  · E. B. Dorman· J. Johnston · D. E. Vokes