Living with iSGS

Catherine set up and runs the world’s largest support group for this condition – Living With Idiopathic Subglottic Stenosis. She talks at ENT conferences around the world and is involved in helping doctors with a number of medical studies aimed at helping patients with this disease.

Living with Idiopathic Subglottic Stenosis
Private group · 3,825 members
Join Group
The world’s largest support group for patients diagnosed with idiopathic subglottic stenosis, non idiopathic subglottic and tracheal stenosis, their s…


How can I help?

Recent research in the USA found that women from lower socio-demographic backgrounds were extremely underrepresented with this disease, suggesting their symptoms are still not diagnosed correctly. Please download and print the following flyer and take it along with you to your next GP visit – you could help save lives!